Lidl trialling the GoTo Shop Trolley in the UK

Will Lidl be the next big retailer to roll-out the GoTo Shop trolley?

Tesco, Asda, Sainsbury, Dunnes Stores and Morrison’s are already making shopping trips easier and more enjoyable for special needs families living in the UK.

This latest trial in one store could see Lidl be the next big retailer to really make a difference for special needs families.

The GoTo Shop trolley is an adapted trolley that provides adjustable lateral and head support together with a five point harness and an open front for easier transfers from wheelchair, car seat or special needs buggy to trolley.

If you’d like to see Lidl ‘roll-out’ the GoTo Shop trolley across all its stores then download the campaign leaflet and hand it in to your local store.

Did you know? 

The GoTo Shop is now available in the United States! Join our US campaign by downloading this leaflet!

“Space to Change” Toilets Make Great Business Sense

If not then read this great blog from Laura Rutherford ‘Why isn’t this newsworthy?’

But aside from the fact that people are being forced to lay on dirty toilet floors, sit in their own faeces or face the indignity of being changed in the back of a car/van in full view of any passing stranger…

There is another great reason for providing fully accessible toilets.

It makes great business sense.

Really? I hear you ask.

But surely, it’s so expensive, the insurance would be astronomical and the space needed would take away valuable retail space… blar blar blar.

All excuses we hear every single time any of us ask a business why they don’t provide a usable toilet that includes a height adjustable changing bench and hoist for our sons, daughters, sisters, brothers, loved ones.

Here’s the thing.

Why do you think businesses such as Tesco, Morrisons and Marks & Spencers provide toilets for other customers?

Why do you find so many loos in a cinema?

It’s because it makes great business sense.

By providing customers with a toilet INSIDE their business, it means they don’t have to leave their business!

So we can stop what we are doing, leave our trolley of shopping for a minute, have a wee and get back to browsing and inevitably spending our money.

We can spend an extortionate amount on drinks in a cinema because we know we can nip to the loo without missing too much of the film, we might even buy another drink when we pop out.

It makes great business sense.

Those toilets are MAKING them money!

Imagine if there were no toilets in any of those places, if you needed to pop out to have a wee would you end up going back afterwards?

Might you get distracted in another store and spend your money there instead?

This is the risk that every single business currently refusing to upgrade their disabled toilets is now facing.

If we are in their store and our disabled loved ones need a wee, we have no option but to leave.

And we will probably be so angry that our children/siblings/friends/clients have not been catered for that we won’t go back afterwards.

Although by the time we’ve found a usable toilet we will either be a few miles away or will be at home anyway!

We might risk visiting a cinema but we wouldn’t spend money on a drink because if they can’t ‘go’, they can’t drink.

Remember that the people we are talking about NEVER travel alone.

They might have carers with them, it might be family, it might be friends.

But every single person in that group is a potential customer with money to spend, money which these businesses are missing out on by not considering the needs of their most vulnerable customer.

So, next time you see a post about this issue and think it’s unreasonable of us to expect these big businesses to make adaptions, remember, it is in their interest to do so.

If they’ve seen the value in doing it for you, how long until they see the value in doing it for everyone?

If you work in retail, know anyone in a management position in a big store (one that already provides toilets for other customers) please tell them why this is a good idea for them to make these adaptions.

There are well over ¼ million potential customers out there who would choose to spend money with them over any other business if they knew their most basic of human needs were being catered for.

Whichever supermarket brand is the first to do this in all their stores, will have me and my family as a life long customer.

You never know, if it makes them more money you might even get a bonus for bringing the idea to them!

For more information about our Space to Change Campaign visit www.spacetochange.co.uk

Why Scooot Makes a Great Christmas Present…

Although we’d never call any Firefly product a toy, we definitely put the ‘fun’ in to functional when it comes to equipment for kids with special needs.

So here are the reasons why we think Scooot would make the prefect present for all the kids on your list this year with limited movement.

It’s a 4 in 1

Scooot mobility rider has 4 configurations CRAWL, SCOOT, RIDE & POOOSH

Crawl – Lets kids move and explore on their tummy helping to strengthen upper body and tummy muscles as they lift their head and shoulders.

Scoot – In Scoot function, kids can sit upright and move around using their feet, this encourages their trunk and pelvis to stabilise freeing up their hands to handle objects, play and explore

Ride – Ride allows kids to self-propel and manoeuvre around the floor, building upper body strength and experiencing independent movement as they go.

Pooosh – Pooosh lets somebody else do the hard work. If your child isn’t ready to properl themselves yet (or they’re just tired) attach the Pooosh handle.

Scooot is loved by ALL kids

There are not many special needs mobility products that involve brothers and sisters, cousins and friends too…

Scooot provides an early experience of independence for lots of kids with limited movement. It frees them to explore, play with pals, chase big brothers and race little sisters without any help.

We bet everyone will be keen to have a go!

Fun & Therapy

It comes with an activity programme…

Now we know the emphasis will be on fun, it is Christmas after all. But once the trees are down and the decorations packed away, our activity programme, created by our team of clinicians will help kids get the most out of their Scooots. Expertly designed to help develop and maintain independent mobility skills.

It’s Portable

Scooot is perfect for keeping at home, visiting friends or relatives, or taking to school…

The Scooot helps kids with mobility limitations be little explorers in lots of different environments. So just like their brothers and sisters they can take their Santa presents out and about.

It might be nice to know that 7% of our sales are going to support the charity Cerebra which supports kids with disabilities and their families in the UK.

Just one last thing Santa, we’re sorry if all the Scooots on your sleigh this year make it extra heavy!

Merry Christmas

The Team at Firefly

Dunnes Stores Launch Clothing Range for Kids with Special Needs (Ages 3-14)

The range is available exclusively online and includes –

Girls, boys & unisex short sleeved bodysuits priced at £4-£5 each.

Girls, boys & unisex short sleeved sleepsuits priced at £7-£8 each.

Girls, boys & unisex long sleeve body suits priced at £4-£5 each.

Girls, boys & unisex long sleeve sleep suits priced at £8 each.

All the items listed above are available in ages 3 through to 14.

The girls print is pale print stripe, the boys a pale blue stripe and the unisex, a grey star print.

The range is available to order online with free delivery on all orders over £40 or a free click and collect service from their 132 stores across the UK & Ireland.

We found the range by typing ‘vests’ in to the Dunnes search function.

www.dunnesstores.com

Dunnes is the first large retailer to offer a range of, ‘poppered’, clothing up to the age of 14. Well done, Dunnes!

Why I Became An Occupational Therapist…

I remember meeting my fellow Occupational Therapy student friends for coffee that afternoon and we all just sighed with relief and happiness that our hard work had finally paid off.

I was over the moon!

I was so excited to begin my journey as an OT.

I really wanted to help improve quality of life through helping a person achieve their goals, by increasing their level of independence and ability to participate in daily activities.

My passion for Occupational Therapy came about when my grandfather became ill and required the assistance of carers, OT’s, physiotherapists and dieticians.

On a daily basis I watched them attend to my grandad. They provided equipment to assist with his walking, washing, sitting, and transfers.

I realised that I would love to work in this area of helping people maintain or regain independence after an accident or illness as I could see my grandad’s quality of life slowly improving.

I began working as a community care assistant for several years which I really enjoyed before taking the plunge and stepping inside the doors of a hospital.

What an eye opener, I soon found out Occupational Therapists did a bit of everything.

I worked alongside and observed many Occupational Therapists who worked with children, adults and elderly people.

As I got more exposure to the various activities and equipment that O.T’s could provide I started looking into it as a career.

I sat my Health Professionals Admission Test (HPAT), passed and got accepted onto the only Occupational Therapy course within Northern Ireland.

We learnt a lot within the course and got various placement opportunities to explore which area we would enjoy best.

There are so many….. I am still trying to figure that out!

Two years down the line I have dipped my toe within the national health system in community and hospital settings and am currently working within the private sector.

Although I am at the beginning of my Occupational Therapy career so far I have found that no matter what area you work in, Occupational Therapy is still a very rewarding and enjoyable career.

The GoTo Shop Cart is now available in the US!

The GoTo Shop Cart which is transforming shopping trips for special needs families in over 1,500 UK stores is now available in the US.

Firefly by Leckey has joined forces with The Peggs Company, one of the largest shopping cart distributors in the United States to bring this specially adapted shopping cart to the United States.

Claire Smyth, previous Firefly Campaigns Manager, ‘We’ve always known that the GoTo Shop cart is needed in the US. Since the cart launched in the UK we have received hundreds of comments on social media from our American followers asking us to bring it to the States.

We are so pleased to be partnering with The Peggs Company to make this wish a reality.

The importance of the GoTo Shop cart cannot be underestimated.

We have a strong community at Firefly and parents are continuously sharing the challenges they face with simple tasks like grocery shopping. It is the simple products that improve everyday life which are the most effective.’

GoTo Shop Cart has been designed to make shopping easier for parents and carers of young children with disabilities and more comfortable for the child.

The shopping cart seat includes a secure and adjustable 5 point harness, adjustable head and lateral support, a padded seat and open front for easy transfer.

We’re calling on our US families to get behind the campaign by downloading the special US Campaign Leaflets and handing them in to your local stores to make store managers aware that the GoTo Shop Cart is now available in the United States.

You can also get your friends and family involved by asking them to use the specially worded ‘Friends of’ leaflet.

See these leaflets and more here!

We’d also love to hear from you if you’d be interested in taking part in future trials, blogging about the GoTo Shop, or being a case study.

Don’t forget to use the #Everysupermarket if you are posting about the campaign on social media.

Attract More Customers by Creating a, ‘Space to Change’.

Research shows that in an average business, 20% of its customers will have a disability.

This group of people spend £80 billion a year.

Many of the 5 million people with special needs, can’t spend their money where they want to because there is no suitable toilet for them to use.

Restaurants, coffee shops, cinemas, department stores, shopping centres, supermarkets may provide a wheelchair accessibile toilet but without vital equipment including a hoist and changing bench these toilets are useless to a large group of people.

However, many wheelchair-accessible toilets in these locations already have the space needed – just 7.5 square metres to accommodate a hoist and changing bench.

“Hundreds of thousands of adults and children with disabilities need a carer to help them with their toilet requirements, and often also need equipment – a changing bench and hoist,” explains campaigner Samantha Buck.

“Even in my local town, I have been surprised to realise how many wheelchair-accessible toilets already have that space.

We just need them to also have a bench and hoist added: the changing bench is less than 2 metres long, and a ceiling track hoist takes up no space at all.

“In an ideal world, we’d like a full assisted accessible – Changing Places – toilet in addition to the standard wheelchair accessible facility, but that takes up an extra 12 square metres under British Standards.

Making better use of existing facilities, and turning them into Space to Change toilets by including an adult-sized changing bench and hoist is an acceptable compromise, which means families like mine can spend time doing what ‘normal’ families do – shopping, having a meal together, going to the cinema.”

Space to Change was developed by campaigners and leading disabled toilet solutions company Clos-o-Mat to bridge the gap between conventional wheelchair-accessible (Document M type) toilets and full-specification Changing Places facilities, to provide an acceptable alternative where space and/or cost is a limiting factor.

To join the Space to Change campaign and champion the need for benches and hoists to be installed in existing wheelchair accessible toilets get in touch!

Full details of the Space To Change concept, and the larger Changing Places assisted accessible toilet, can be found at www.clos-o-mat.com.

Clos-o-Mat’s website also includes full support data, including white papers, CAD blocks, video, technical specifications and typical layouts.

Uniquely, Clos-o-Mat offers, in-house, a full support service, encompassing site surveys, design advice, supply, installation, commissioning and subsequent service & maintenance.

As Much As I Wish It Was, Life Is Not A Pinterest Quote.

Sleep is ESSENTIAL, for everyone. We all know this.

Why is it so hard for my little boy?

He is constantly exhausted.

He cannot get comfortable at night. He cannot switch off. His legs hurt.

He cannot sleep properly.

He must feel dreadful. Because I know I do.

I feel like I’ve been beaten with a club for years. Like somebody has run me over.

My mind is not clear. I cannot rationalise anything! I lose my rag constantly!

I cannot get things done. And a mother of a child with special needs has to get things done!

There is no choice. So why does this happen?

I grumble about lack of sleep all the time.

And so often I’m met with, ‘We are only given the challenges we can cope with,’ – you know the one where because your child was born with a disability, it makes you stronger than everyone whose wasn’t?

And every time I hear it I silently implode.

I know people mean well. But what an absolute load of crap!

If my son could sleep and I could therefore sleep, life would be so different.

Life would be manageable and less stressful.

It would be enjoyable. We would be further along with everything, from my to-do list through to his mobility.

And I can tell you now. I absolutely cannot manage it!

Not with everything else on my plate. A plate that feels more like a giant platter that is constantly over spilling and getting worse because of the lack of sleep!

I am constantly broken.

I may not look broken to you, because to save your embarrassment, I politely thank you for citing that proverb to try to make me feel better. But it doesn’t.

It just makes me feel worse. Because to me it translates to, ‘I’m a crap parent’. Because sometimes, I really cannot manage what I’ve been dealt.

I know that is because you cannot see the paddling going on beneath the water.

The desperate struggle to stay afloat and save myself from drowning.

I am just hanging on in there until I finally cannot paddle anymore. Which clearly I cannot let happen!

So rather than thinking I’m some sort of superhuman, which I am not, why not just pop over and make me a cup of tea or just give me a hug when you see me?

That would be so much more helpful.

So I know you know, that despite the fact I’ve covered the bags under my eyes as best I can with make-up and have put on a cheery Mary Poppins-esque grin on the school run, I am rather worn out.

And that’s an understatement.

The Day I Dropped My Son

‘The day I dropped my son’ was a blog post recently shared on Selfish Mother a global online community for mums.

It struck a chord with us here at the Firefly Community as we continue to campaign for improved accessible toilet facilities with our own Space to Change campaign and to support the Changing Places campaign.

The mum in this real life experience shared her story anonymously but everyday we hear from parents of children with special needs about the difficulties they face toileting their children on days out.

Often the focus is on dignity and health from a hygiene perspective.

Photographs are shared of children being changed in cramped and dirty places including the floors of public toilets.

This mum’s shared experience puts the spotlight on an often overlooked issue caused by poor accessible toilet provision – and that is the risk involved in lifting a disabled child or adult in unsuitable circumstances.

The risk to the person with the disability, the risk to the carer and the risk to any other family members who might be accompanying that day as in this situation a sibling.

It could be said that the family in this story got off lightly, a few bruises and an aching heart, made better with cuddles and biscuits.

However, the, ‘what ifs..?’ will haunt every special needs parent who finds themselves in this situation.

What if the mum had caused herself a serious back injury leaving her unable to care for her child properly in the future?

What if the child has sustained a serious head injury in the fall?

What if his sister had been knocked to the floor during the incident?

There are a lot of, ‘What ifs..?’ in this situation. A situation that many special needs families face on a daily basis.

The biggest and most important, ‘What if..?’ should be:

‘What if this venue had provided a bench and hoist in it’s accessible toilet?’

If that had been the case, then this mum would never have found herself in a situation of trying to lift her disabled child from a wheelchair to lie him on a toilet floor to change his incontinence pad.

Space to Change toilets allow adaptions to existing 7.5 sqm accessible toilets to include adult-sized changing benches and hoists to ensure the safe and dignified lifting, changing and toileting of children and adults with complex needs.

They are essential. However, they aren’t widely available.

To sign a petition for a changing benches and hoists to be installed in all large public buildings and spaces – click here.