Should SEN Parents Be Worried About How Much Screen Time Their Children Have?

Should I be worried about them using this ‘tech’ too much?

I admit it, I’m quite grateful for them to be occupied and relatively quiet right now. They sometimes play educational games, but today they are not and I’m not challenging that, they are happy.

Last night I listened to a debate about how much technology and screen time we are exposed to, both as adults and children. And I wasn’t shocked to hear that many of us spend more hours a day looking at screens than we do asleep.

I have no doubt that we are as guilty as anyone of adding to that average. Did I feel bad? I did a little. Especially when the presenters were talking about children feeling neglected by their parents because they spend too much time on their phones.

That is sure to touch a nerve with many parents.

They also discussed the number of graduates who found presenting and talking to people in person a real challenge and those who wrote on their CVs in text speak! (Imagine!).

That was rather more shocking to me. 

So what should we be limiting our time using technology to? Just educational stuff?

Are we essentially ruining our kids’ chances of employment if we don’t lay down the ground rules now for using language correctly and speaking to people in person rather than text and email? 

How do we really know if this is a bad thing or not?

The world is so different for our kids. We didn’t have this technology when we were their age and we don’t really understand exactly what the world will be like when our kids are adults. 

And is it harder for SEN parents? 

For example, my daughter who has no additional needs, will sit for hours writing and drawing, cutting and sticking, she is so artistic. I join her, we colour and we create.

It’s great and I simply love that she is following my passion for art. 

But for my son, after a few minutes of using his hands to do these things he is pretty tired.

And frustrated (he has Cerebral Palsy, Spastic Quadriplegia and is a wheelchair user).

Whilst we do often practice them as he needs to develop his fine motor skills and that is all part of his therapy, we certainly don’t sit and write and draw for hours.

A couple of words written or a picture attempted and that is enough for him. So then he wants to do something less demanding, like watching videos on YouTube.

Who can blame him? Because he can do that independently. 

He generally watches sport (any kind of sport). He loves football and racing from horses through to Formula One, just like his father!

He will no doubt watch Sky Sports News on a continual loop one day very soon, like his father too!

But is it wrong to let him watch too much of this, when it is something that he really enjoys and it relaxes him?

It works for us at the moment and really helps our lives function. And sometimes, as many of you will appreciate, having a child with additional needs means that function is the best you can achieve.

In fact that’s a great day!

We did do our research when buying the children a tablet and we were advised by Hadley’s sleep clinic that a Kindle is the best because it omits light differently to all the other tablets and does not interfere with your sleep (as much).

But does that make it any better than putting him in front of the TV?

And because holding a pen and recording is a huge challenge for Hadley, he has just been provided with a laptop for school and all of his home learning.

So if we were to limit the screen time he has, we would not have much choice but to reduce the time that he really enjoys playing games and videos, because we obviously cannot recommend that he spends less time learning at school than he needs to. 

I don’t honestly have all the answers to my questions. Whilst I appreciate that we probably do use our screens slightly more than the average family, we do tend to have a (I believe) fair reason for this, most of the time.

Sometimes we just need a break from all the transferring from equipment and physical strain.

Sometimes we just want to escape by ourselves.

I guess in the days before smart phones and laptops people escaped with alcohol and/or a book (I still do that too!). 

But also because other tasks are harder for us to complete as a SEN family at times and so we use technology to help.

I wish I could say that I adhere to a ‘no tech’ at dinner time rule, but sadly I don’t manage that either, not all the time. Because there are many times that the only way I can get nutritional food into my son is when he is completely distracted by something on TV or tablet.

Then he has been known to consume entire bowls of mashed veg, when without distraction it is nothing short of a war! 

I am not proud of it, but I weigh it up against the fact that his body so desperately needs the vitamins, fibre and fat. 

I challenge any parent not to do the same when they are worried about their child losing weight and becoming malnourished. That’s very real for so many of us.

Maybe I’m a terrible parent. Or maybe we all just do what we have to do. There are no real rules to this SEN parenting lark and I do think that the graduates who could not present well or write a CV were affected by other things, not just their love for their phones! 

I believe it is our job as parents to encourage our children to be the best they can be in all aspects of life despite how much screen time they have.

I don’t think we should beat ourselves up about it or feel like a lousy parent if sometimes it just doesn’t work like that.

If they are happy, loved, doing well at school and healthy, that is way more important to me. I’m very lucky that both my children are.

So I don’t think I will be adjusting the time that we spend using tech all that much. But I will be mindful and try to reduce it where I can.

I am aware that our time together is precious and that I will be very sad the day they choose to spend their entire lives in their bedrooms talking to their friends on snapchat rather than me. (I’ll be devastated).

But that is a battle for another day. 

Keeping Kids With Special Needs Safe

We put locks on all cabinets containing poisonous cleaning supplies, and we place every sharp kitchen knife way up high, out of sight on top of our highest shelf!

When we find out our kids have special needs, keeping them safe becomes a whole different ball game altogether!

Safety proofing a house for our special needs kids can pose quite the challenge!

Our kids may not mature mentally and emotionally like typically developing kids do, but their bodies mature and grow bigger, stronger, and more physically adept just the same.

One day before we know it, our special needs kids will be climbing over the baby gate, figuring out how to unlock the cabinet where the poisonous cleaning supplies are kept, and suddenly one day, they’ll somehow figure out that they can climb up to the top shelf where all the sharp kitchen knives are kept!

The problem is, even though they are physically able to do all that climbing and figuring out, they don’t understand that they can get hurt or even die while doing so.

Many of our special needs kids just do not understand the meaning of danger and many never will!

Many of our kids are escape artists and wanderers, too!

And it’s our job as their parents to protect them and keep them safe.

Try as hard as we might however, it is literally impossible to be supervising and watching our children every single second of every single day!

Never fear however, because there are safety measures you can take and products that you can purchase to make your home and yard a safer place and that will ultimately keep your child safer.

So how can we keep the house and yard safe for our precious kids with special needs?

Install safety bumpers on all doors so that fingers don’t get pinched.

Use a baby monitor system when you can’t be in the same room with your child.

Move all breakable, fragile and/or valuable items out of sight and reach of your child.

Install padlocks on all cabinets containing medications and poisonous or otherwise dangerous items.

Purchase a special needs safety bed to keep your little night owl safe while you sleep.

Another option for little night owls is to install a dutch door on your child’s bedroom – leave the top half open so your child does not feel so confined, (if he’s not a climber) and so you can see what’s going on inside!

Install locks on all doors to rooms that are off limits to your child. This could even include bathrooms if necessary!

Put locks on all windows.

Install window and door alarms that will alert you if your child opens them.

Install a tall fence with locked gates around your entire yard and pool if you have one!

Purchase a Perimeter System and establish physical boundaries for your child. If he moves beyond the boundary an alarm will sound off.

Provide your child with a GPS locating device.

If he or she does manage to wander off or get lost, you’ll be able to find him or her quickly and easily.

Far too many special needs parents feel as if they can never let their guard down.

They feel as if they’re on hyper alert all day, every day, 24/7 making sure their precious special kids are safe and sound at all times.

But even special needs parents need to be able to relax in their own homes once in a while…

By implementing some or all of the above measures, I guarantee you’ll be able to loosen up, decompress and let your guard down, if even just a little!

A Problem Shared…

The old saying, “A problem shared is a problem halved?”

For us, while sharing our fears, trials and battles with those who genuinely do understand may not actually make the problem any smaller, it DOES make it easier for us to deal with.

Sometimes, those fears are so huge that we aren’t able to confide in others who haven’t walked this path with us.

Sometimes sharing those fears and battles with our wider family and friends just doesn’t feel possible.

Yes, they walk that path alongside us but unless you’ve felt those very same sharp and agonising stones under your feet it’s impossible to fully grasp what it feels like.

We physically feel each other’s fear and pain.

And we share each other’s joy when our kids overcome some hurdle, or achieve a new milestone.

But it is also a tremendously frustrating thing, to feel how much someone else is hurting and to be completely helpless to do anything to alleviate that pain.

Right now, many of my friend’s children are either facing extremely risky surgeries or they are struggling against a system which seems unwilling or unable to offer even basic support for families in crisis.

And there is nothing you can do but be on the end of a phone, or chatting via social media.

We are each other’s life lines, but right now I just want to get into my car and drive to see them, and to give them a proper hug, not a virtual one.

More often than not, there are no answers, no solutions.

Life with medically complex children often feels like the incomplete problem, where no matter what you do there is no solution.

In such times we feel like all we can manage is getting out of bed.

But having that monumental support genuinely does make us feel like we can take on the world.

Thoughts On Life From A Little Girl With Autism

So here are some of her thoughts on things:

On Church:

When in church one day and we were having communion; “No wonder they have cake at the end of this is all the snack you get!

During collection; “This is just like when you go on a bus. God does not give change either.

When given a jar of Bible verses as a gift.

Mum, what is in the jar?

“Verses out the Bible honey.”

Well that was not good. Sammy’s Bible will be all torn and not have any verses left in it now!

On healthy eating:

Can you cut my banana into five pieces please mum?


So I have my five portions of fruit today!

On bath time with her brother:

I don’t like having a bath with Isaac. When I bath with him I get wet!

On shoes:

If indoor shops sell indoor shoes why do we not have to go to an outdoor shop to buy outdoor shoes?

I don’t get why shoes have tongues. They can’t talk!

On Escalators:

I think escalators would be much better if they stopped to let people on and off instead of keeping moving. Moving is dangerous!

On the naughty step:

Why is it the naughty step? I don’t get what the step has done to be naughty?

On teacher training days:

“Mummy what is an in-service day?”

It is when the teachers get taught and you get a day off.

Ok, I don’t mind if the teacher sits on my chair and does my spelling test for me then.

On PE:

I don’t like PE. They do everything wrong. One day they told me to walk on a bench but that can’t be right because benches are for sitting on!

I don’t like forward rolls. I don’t like pencil rolls. I just don’t get why they can’t just give us sausage rolls!

On the weather:

Why do the weather people not just put sunshine on the map because they control the weather and no one even wants rain!

On growing up:

When I grow up I want to be a bank machine so I can give everyone money.

On family dynamics:

“Would you like mummy to have another child?”

Maybe. Could I have a big sister please?

On playtime at school:

Why do they send us outside to play when all the toys are inside?

On sports day:

Why do they call it sports day when we only do it in the morning? It should be sports morning not day!

On schools dinners:

I don’t like school dinners because they are cold.

Why are they cold?

Well you told me not to eat my dinner until everyone was sitting at the table and that takes ages in school!

On bullying:

I don’t get why the teacher told us not to call everyone names. I call my friend Abigail and she calls me Naomi. Why can’t I call her that anymore if that is her name? I think we SHOULD call people names. The names their mummy calls them!

…She makes a lot of sense for a little kid don’t you think?!

How My Faith Helps Me As A Special Needs Parent

My faith in God is what sustains me through the middle of the night when I wonder if I can face another day.

My faith strengthens me when I face yet another battle with lack of support, transport issues, schools challenges or health problems with my children.

My faith is what keeps me focused when I am battle weary and exhausted.

Knowing my God cares about me, about my children and about our situation carries me through.

Knowing I am not alone and He is catching my tears comforts me when the days seems bleak and hope is hard to find.

I could not do this without my faith in God.

My son is almost eight years old. He has very complex needs but one of the hardest things I find as a mum to cope with is the fact he has no verbal communication.

He cannot say, ‘no’, ‘yes’, or even, ‘mum’.

There is a verse in the Bible that says, “Before a word is on my tongue you know it completely, O Lord.” (Ps 139:4)

I cannot say if my son will ever speak but what I do know is that God knows what he wants to say and communicate even without words. This is one of the ways my faith helps me stay encouraged as a special needs parent.

Both of my children struggle with sleep.

One often has night terrors due to anxiety and the other has seizures. It is in the small hours of the night when your mind wanders easily and fears can take over.

It is those times especially when I am susceptible to extreme anxiety about impending tests for my children, thoughts of anaesthetics needed once again for more brain scans, worries about the future and thoughts about what will happen when I can no longer care for these precious gifts God has given me.

If I never had my faith I know these troubles would weigh on me so much but I now lean on a simple verse that says, “Cast all your anxiety on Him because he cares for you.” (1 Peter 5:7)

This is yet another way my faith keeps me strong in times of difficulty.

Having two very special children often means I find myself fighting even when I don’t want to.

I had to fight to get my son the right school placement, I have had to fight to get both children professional support, I have had to fight for respite, adaptions to the house and school transport.

I could easily become so consumed by it all as it seems never ending and my children’s needs are so high.

One night, as I was wading through more paperwork and trying to draft yet another email, I took a moment to pray and pick up my Bible. I came across a verse that has become my anthem recently in all my battles: “The Lord will fight for you; you need only be still.” (Exodus 14:14)

It was exactly what I needed to hear! I sent the email and head back a week later to hear yet another battle had been won and my son would continue to get his own taxi to and from school with his own escort to support him 

I take my children to church every opportunity I can. It is a place where they are welcomed, loved and accepted.

Their understanding may be different to others, but God can still use them. Many times my daughter has ear defenders on and my son sits rocking and flapping.

Just getting there for us is often an achievement but we always gain from it even if it is just watching my son smile as soon as the music begins!

Faith is not something everyone has and I respect that but for me it is something that has helped me so much as I journey with my two unique little children.

I am blessed and I am grateful. One of the most incredible things I have though, is peace. Jesus said, “Do not let your hearts be troubled and do not be afraid.” (John 14:27)

Whatever the future holds for my special needs children, I believe God will be there with us going through it all. 

“How do you do it?” people ask me. My answer is quite simple: by faith.

Travelling Abroad with Special Needs

As my own family prepares for our summer vacation, we are just as delighted as others to escape for a while, and to have a change of scenery.

We anxiously await precious time away together to relax and to make wonderful memories.  Planning a trip requires strict attention to detail for us.

With two children with special needs, it is not as simple as throwing some clothes in the car and whisking ourselves away.

Meticulous coordination and arrangement goes into even a simple day trip for us. As we are planning a trip overseas, internet searches are imperative for us to figure out…..

How are we gonna do this?

While many parents are searching for “Best places to eat”, we are searching for “Best ways to store pureed meals.”

Instead of looking for “Popular attractions”, we are looking for the answer to “Can I carry CBD oil on an airplane?”

“What items can I take in my carry-on luggage?” is replaced by “Do I need prescriptions for all the seizure and anxiety meds in my bag?”

We’ve appropriately worked out the time difference and the necessary timing of the seizure medication of one child and anxiety meds and CBD oil dosing for the other… least we think we have!

Instead of wondering how many sites we’ll be able to see during our visit, we wonder if we’ll be able to cram our daughter’s orthotic equipment into our suitcase.

In place of “How to occupy children on an airplane”, I am driving myself nuts searching “Weight and length capacity of baby changing stations on airplanes.”

In the two years since we’ve flown, our daughter has grown quite a bit and she was nearly too big for the restroom changing station back then.  Sigh….

There is so much to think about when planning to travel as a family. It can become quite overwhelming when your children have special needs.

You want to ensure they are comfortable, safe, healthy and happy.

Luckily, in my frantic searching, I have stumbled across helpful sites designed for parents like us. TSA Cares is a site that offers helpful assistance for disabled passengers. Also, The Center for Children with Special Needs (website not accessible outside US) provides a list of travel resources for families flying with disabled children.

This reinforces the fact that we’re not the only family with these worries and questions. We CAN do this!

As daunting as the task of flying abroad with our children is, it is also a great blessing.

The opportunity for them to see the world is such a privilege and we have incredible people in our lives helping to make it a reality.

They would love to see the world. They want to be out in the world, actively participating, exploring and learning.

Yes, it will take extra careful planning for us to take on this adventure, and some extra deep breaths, but the beauty they will see and lifetime of memories we will create will make it all worthwhile.

It is possible, and I’m thankful the internet has given me some peace of mind as our vacation approaches.

Why I Took a Photo of Myself Sitting on the Loo… and Posted it on the Internet!

I was trying to help raise awareness of the need for, “Changing Places”, and, “Space to Change”, accessible toilets with benches and hoists for disabled people.

You see, my son can’t use the loo in the same way that I can.

Like hundreds of thousands of other people, he needs a hoist and changing bench too.

Otherwise he has to lie on filthy toilet floors to have his nappy changed.

He’s almost six years old and is not a baby and certainly does not consider himself one.

But the world doesn’t seem to care about that and generally only provides changing facilities for infants.

I am so sick of having to lay him on the toilet floor, dangerously lift him and listen to him beg me not to.

It’s soul-destroying and physically dangerous as well as genuinely depressing.

I can’t protect my son from this indignity and danger and that is something I find really hard to deal with.

But I took the photo, not only because I am determined to change the world for my little boy, but because there are so many people in our situation who are genuinely suffering.

They deserve so much more.

And I believe the ridiculous stigma around using the toilet and the lack of education is making this a huge challenge.

Why are we so embarrassed to talk about using the loo?

I mean we all have to pee right?

It’s just more complex for some of us!

I was contacted by a wonderful lady the day that I took my toilet selfie.

She contacted me to tell her story as she had nowhere else to turn and was so desperately upset and so fed up too of being treated like a baby.

She is in her thirties, is a full time independent wheelchair user and is urinary incontinent due to her condition.

This is what happened to her.

I got up as usual on Wednesday.

There was nothing special about my day ahead.

Just an average rainy day, so I was just going to potter about.

I did remember that I had to pop to the GP’s surgery at 9.30am to pick up a prescription though.

Oh joy, I thought. That means I’m going to get pretty wet, transferring and getting the wheelchair in and out of the car. But off I went.

When I got to the surgery, I realised that my nappy was pretty full. My mood was already dulling in the wet, then I started to get a little anxious.

I decided, “Whatever!” Why should I wait until I get home and end up wetting my jeans and having to put on another clothes wash? I’ll just go and ask if they have an adult changing table.

I was a nervous wreck as I went up to reception.

I have never asked before.

Twenty-six years I’ve been incontinent and I’ve never felt able to ask before.

I always felt so ashamed.

I spent 10 minutes trying to talk myself into it and I finally plucked up the courage.

Excuse me, Excuse me, Excuse me’ (I had to say that about five times as the desk is too high and I can’t see over it in my wheelchair).

This is a difficult thing for me to ask, but is there any chance you have a changing place where I could have my nappy changed?

I did it.

It was scary, but I asked.

The lady behind the reception desk was nice. ‘Of course hun. There is an actual changing room. Just this way.’

I was amazed.


How Brilliant!

I wish I had asked before I followed her to the room.

She opened the door and said: ‘There you go hun’.

And there it was.

My heart sank.

In front of me was a cabinet, with a tiny baby-changing mat on top of it.

That was it.

I wanted the ground to swallow me up.

How on earth was I supposed to be changed on that???

Is that what this person thought of me, that I was a baby?

Or did she think I had a baby with me?

Surely she could see I was alone?

What do I do now?

I left.

I was in floods of tears by the time I got home and my nappy had leaked.

The whole incident left me feeling so rubbish.

It’s not that this woman was trying to be unkind, she clearly had no idea what I was talking about, but it has made me feel so down and so unimportant.

My self-confidence has been shredded. I will never ask anyone again.


When she told me this I just had to do something.

I had to try to help and raise some more awareness.

I don’t want this lovely young woman, whom I’ve never met before, to endure being treated like a second-class citizen.

To be made to feel so hideous.

To be degraded and discriminated against and humiliated in this way.

I have no idea if anyone will join in and take these selfies.

But I really hope so.

We’ve had ‘no make up selfies’ and ‘ice bucket challenges’ and all sorts of other social media campaigns that have made so much money for so many incredible charities.

I’m not asking for donations or pledges.

We don’t need money.

We need change!

My photo won’t save lives.

But I hope it might just help to change some.

We are all only one accident away from needing these facilities.

Please help me raise awareness and break this stigma about toilets that is making it so hard to make ourselves heard.

Toilets are not glamorous or deemed newsworthy, so we rarely get this campaign in the public eye.

The media don’t seem to be that interested in this widespread problem that is hurting our loved ones.

But perhaps if this campaign takes off it might make a difference.

A simple photo of you doing something that most of us take for granted could change the lives of hundreds of thousands of people who do not have that luxury.

The small amount of indignity you might feel taking a photo like this, is nothing compared to the indignity suffered by lying on a urine-soaked toilet floor. I promise you that.

The next time you spend a penny, take a selfie.

Nominate your friends. #weallneedtopee #changingplaces #spacetochange

Thank you.

How My Son Has Shown My True Colours!

None of us really know what this means until we meet our babies for the first time.

We heard what they were saying and we probably believed them but we did not know the extent of how this would be relevant in our experience.

This was more than true in my experience, as Zachariah has also shown me the person I really am.

I have always been a relatively patient person, with my desire to become a teacher it fitted in quite well.

However on the scale, my patience was not as highly scored as I first thought.

When I first started to try and play with Zachariah my patience was well and truly tested, because he is severely visually impaired he would either not see the toy I was presenting or he would take a very long time to see it.

I got frustrated, I began to believe I could not play with my son and because of that I must be a failure.

However over time I began to understand my son more and I was able to present toys in the way he needed and I learnt how to create the correct atmosphere for him to see, and bring to him bold, contrasting colours.

My patience from here had started to develop, it had reached a new level. I thank my boy for that!

I have always struggled to hold my emotions in. When at University studying in the hope to become a teacher, I was told several times that I should consider teaching children with special educational needs and disabilities.

I remember telling those who suggested it that I would become too emotionally involved, I was not cut out for it and that I am not strong enough to be that person.

How wrong could I have been?! As 3 years later God blessed me with a little boy who has severe disabilities.

Now am I going to say that I am not strong enough or good enough to be his mother? Of course not! God gave me Zachariah, who has shown me who I really am.

So to those people who said to me that having a child would change me, I would like to reply by saying my son hasn’t changed me as such, but he has brought out the better in me, he has shown me how to be patient, how to be strong and how to not be afraid nor doubt myself.

He has shown me how to laugh louder, smile brighter and appreciate the little things.

Thank you Zachariah for showing me who I am.

Please Quit Using the Disabled Community in Your Political Campaign!

Election years are nightmares. Simply nightmares.

My phone blows up with political calls that I cannot stop, demanding that I give each side my vote, you peruse through your social media contacts and friend lists reading their daily statements and proclamations on who they think will be the country’s savior all the while trying not to let it change your perception of them.

You stare at televised convention speeches with your jaw open in both a combination of disbelief, shock and dismay that this is as good as it gets.

And then, just when you think it can’t get any worse politicians throw in the disability card.

These days being unkind, unsupported or not going above and beyond the American with Disabilities Act, puts you in a light similar to that of kicking a puppy or abusing a child.

It automatically invokes an angered response of the disabled community is being taken advantage of, disparaged, humiliated or un-cared for.

Politicians have figured out this very important fact, and are now using it as a tool to gain votes, followers and let’s not forget – most importantly to attack their opponent with during their political campaign.

Hillary Clinton is accused of parking illegally in a disabled parking spot and then laughing to reporters when asked “why?”

And it’s reported that Clinton said “When are they going to get those f—ing ree-tards out of here?!” in reference to children with disabilities moving too slow to gather eggs at an Easter Egg hunt on the lawn of Arkansas governor’s mansion in 1984.

Yet, we are then painted with a contradictory picture at the Democratic Convention which was televised for all of America to see in which she parades a young woman, Anastasia Somoza, now a disability advocate, onto stage to make the claims that Clinton began advocating for children, including her, with disabilities before Public Law 94-132 was passed allowing children with disabilities to have the right of inclusion in public schools.

Yet, reports indicate to the contrary that in 1973 New Bedford was already including children with disabilities in a public school setting and giving children school bus rides to school, way before her claimed intervention to improve the lives for children living with disabilities.

Clinton’s campaign further drew from criticism aimed at her opponent in which is reported that Donald Trump mocked a disabled reporter.

She wasted no time in putting together a condemning commercial aired at all times of the day of parents of a little girl living with spina bifida, proclaiming how appalled they were at Trump mocking a reporter with a disability.

Trump states that he was merely mimicking what a flustered reporter would look like when responding, and had no knowledge that the person he was referencing in any way had a disability.

Trump also has been subject to multiple lawsuits as a result of being out of compliance with ADA law. Yet the same is true for over half of American businesses and establishments that have not yet come up to ADA standards.

Note to politicians: we’re all still changing our disabled children on filthy bathroom floors.

And while that certainly isn’t yet included under ADA law, there is a lot missing from the disability conversation when it comes to politics.

Politicians know that Americans like and quite frankly crave “feel good” stories. We want to be moved. We want to feel that someone out there can rise to the occasion of being our dedicated and devoted hero. That we’ll all be saved from our current circumstances because someone will come in and sweep up all the dirt and take it out with the trash and we’ll all live happily ever after.

If you think you can make a vote for either party based on who you “think” treats those with disabilities better, then we’re all feeding into the hands of either political campaign and voting with our emotions. Which is one of the worst things we can do.

I’m sitting here in a slue of Medicaid denials for my son, that keep rolling faster than punches a professional boxing match.

We’re struggling financially to keep our heads above water, I’m currently pursuing food stamps and on government insurance.

Where is the conversation that discusses what is happening to families with disabilities?  How we’re thrown into immediate poverty after a child with a disability joins the American family unit?

Where is the discussion of the countless programs that being cut to fund medical, therapy and equipment costs for children with disabilities?

What about adults with disabilities who are in dire conditions suffering in group homes or lacking provider benefits and safe environments and protections from abusive caregivers?

Someone parks in my son’s parking space illegally everyday. Someone mocks my child with a disability everyday. So what?

Either I grow thicker skin or I’m going to be a walking heap of tears everywhere I go.

Long-term, where can either of these politicians take us when it comes to lifting us up from the very things our government is already doing to us?

Politicians and the American government is exactly why we are struggling as bad as we are in America when it comes to raising children with disabilities.

And we’re supposed to just accept that if either political candidate tells us they’ll be our saving grace when we all know that people will say whatever they need to in the moment whether they have intentions of ever acting on it or not just to receive your hard earned vote.

What our government is currently doing for us isn’t working. It’s a broken system.

It doesn’t matter if you are mad at Hillary because she parked illegally in a disabled parking spot, or if you are livid with Donald because you believe he did intend to mock a reporter with a disability. Where is the action plan for changing our family’s lives?  And I mean really changing it for the better.

Inclusion – we already have it; ADA compliance – to a big degree we already have it.

What we don’t have is financial security and help for our children to give them the qualify of life that they need and deserve.

What we really need is our politicians to quit using the disabled community to force us to vote with our emotions and completely ignore real issues at hand in the 2016 presidential election.


Hillary Clinton: Parking In Handicap Spaces And Laughing