• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Could I be prouder? Nope, I think not

Could I be prouder? Nope, I think not

I may be a little bit biased, but I am unbelievably proud of this remarkable little human that is my son; and I have absolutely no doubt that every other parent feels exactly the same about their child(ren).

But hear me out. 

Like any parent, I look at my son and wonder what I must’ve done in a past life to deserve such a beautiful, precious little person in my life.

For parents of kids who like my boy are life-limited, every day takes on a much more poignant need to hold on to every moment.

Every cuddle, every touch of our children, every moment becomes treasured.

Less than 16 weeks ago I had to stand by helplessly as the nurses and medics fought to save my sons life.

For two weeks we faced every parents worse nightmare and everyday our boy proved that his desire to live was stronger than the infection threatening to overwhelm his body.

So for us, while lockdown 3.0 isn’t what any of us wanted, it was expected and actually is quite precious.

Because it allows us time with our son that we would otherwise miss.

After a not-too-nice day working from home, I managed to carve out 40 minutes this afternoon to spend with my boy when it was just the two of us.

His class are learning about seeds, how plants grow and about insects this term.

So we potted up a couple of houseplants, planted around 15 garlic cloves, and potted up Sam's avocado (that we originally started off in lockdown #1).

To say he was thrilled by how that plant had grown would be an understatement!

It didn’t just cover an aspect of home-school for the afternoon but gave us precious time together.

Sam absolutely loves lockdown.

He is thriving on having both of us with him daily.

Yes, he misses his friends and teachers – his lovely class teacher video calls him every week which he loves and we keep in touch with his friends as much as possible.

But far from struggling, he is developing at a rate of knots.

This utterly remarkable little boy is the reason I get up every day.

To look at him now you'd never believe we were minutes away from losing him in September… like so many of his friends my boys ability to bounce back never fails to amaze me.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Carolyn Voisey

Meet Our Blogger

Mum to one incredible little dude, I work full time in higher education and have my own small business as a jewellery designer/creator. I love nothing more than having time with my family, being outside and with my animals (chickens, cats, dog..!).

View Carolyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...