“No, Actually, Having a Disabled Child Did Not Ruin My Life. Here’s Why.”

There was a lot of devastation, hurt, blame, denial and grief that followed this time. But now when I think about this, I think; why?

Why would having a disabled child ruin my life?

Oscar was born prematurely and was very poorly when he was born. We did not know if he would survive. If anything had have happened to him, that would have ruined my life.

I will admit that I did not want this for Oscar, no parent wants their child to be ill or disabled, but, Oscar has only made our life better. He is so beautiful and special.

There is not a day goes by where I am not thankful for my son as I know that some people who have been in similar situations are not as lucky as me.

Some people do not get to take their babies home.

I cannot think of anything worse than this.

Oscar is my absolute pride and joy, the love of my life. Despite everything he is such a happy and loving little boy. Although, at times things can be challenging, we just have to get on with it. Nobody said life would be easy. And, even when times are difficult, a smile from Oscar makes everything worthwhile. Oscar’s smiles can melt even the hardest of hearts.

For me, I would not change Oscar for the world, as he would not be Oscar. To me he is perfect, even if the world sees differently.

But, would I change things for Oscar? In a heartbeat.

At the end of the day it is Oscar who is disabled, not me.

If I was not prepared to do everything I can for my son including looking after him for the rest of my life, then as far as I am concerned I should never have been a mum.

So, no, having a disabled child has not ruined my life.

I am honoured to be Oscar’s mum and I couldn’t be more proud to say that Oscar is my son.

 

About Firefly

For Firefly, life is all about experiences and being face to face with friends and loved ones. By enhancing the child's perspective and giving them the tools to 'join in', the child not only has the opportunity to participate, but can also be at the heart of it.

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