The Love Behind Special Needs Adoption

While some parents go into adoption with a specific mind set or desires for how they’d wish to start or expand their family while others fall into adoption rather casually and sometimes by pure chance.

In some cases, prospective parents are already open to the idea of accepting a child into their family no matter what the race, gender or even health condition of the child is.

And sometimes the love and bonding of a child inspires adoption in foster to adopt situations.

Regardless, of how special needs adoption comes to be, the universal theme is love.

I had the opportunity to interview two families on their special needs adoption. Their candid responses to my question left me feeling in such awe.

As a special needs parent myself by way of a biological child, I was extremely interested in what led a set of parents to adopt a child with special needs, and in some cases with severe disabilities and challenges or even a shortened life expectancy.

Essentially, why would you say yes to raising a child that you knew would change the dynamic of your life so drastically?

Their responses were everything you’d hope for and more.

I asked Autumn Hernandez, Mom to a primarily typical daughter who is sixteen and a younger adopted daughter, what she perceived as her greatest joys and rewards from becoming and adopted parent to a child with special needs.

She replied, “Some of my greatest joys are seeing the improvements she makes and the milestones she hits.

Above all the greatest joy is the smile on her face when she hears momma.

To her I’m just mom there is no adoption or other mom it’s just mom.”

Likewise I asked the same question to Kelly Price, a mom that describes her “biological daughter as twice exceptional and her youngest having sensory issues.”

Kelly, didn’t seem to bat an eye at the idea of incorporating an additional child into the already existing challenges of special needs parenting.

I also asked Kelly the same question about what her greatest joys and rewards from special needs parenting were and she expressed; ” “Meh, I would say they are the same joys and rewards you get from raising any child.

She has grown and achieved so much beyond what the ‘experts’ thought possible.

Relationship dynamics after a child with special needs has been introduced into your circle of friends, close family and extended family have always been of particular interest to me.

I’ve found special needs parents of biological children often have a difficult time with family and friends after the birth or diagnosis of their child with special needs.

In many cases they express abandonment of their closest friends, withdrawal of support of family, and relationships that cease to exist over time.

However, the opposite seems to be true in cases where a family has adopted a child with special needs into the family.

Kelly stated that she found that her “family and friends accepted her very quickly and have been there for us throughout.”

Likewise, Autumn replied that while it perhaps changed some of her extended family dynamic, “but beyond that I don’t believe it has changed any other relationships or support/assistance.”

I asked both Kelly and Autumn if they felt that they were treated differently than those who have biological children with special needs.

And both wholeheartedly agreed that they do feel that they are treated differently.

Kelly states that people continually tell her that she is, “special to take that on” – she hates that.

Autumn told me much the same, that people tell and, “act as if my husband and I are saints for adopting her which I find extremely annoying because the fact is no matter her needs she’s just my baby girl and I don’t do anything any other parent wouldn’t do.”

Special needs adoption might not be for everyone, but for the families that decide that is where their life’s journey has led them to do, everything I felt and experienced with these two mother’s sharing their hearts with me, made me feel nothing but a whole world full of love.

To them it’s no different than a biological child that they gave birth to, perhaps just with some extra care and needs.

Whole 30 for the Special Needs Parent

When it comes to food there are a host of issues, problems and challenges that come along with that for a special needs parent.

The universal theme is we simply don’t really have the time to adequately take care of ourselves, which includes our diet.

You’ll hear countless people preach, “You have to make time for yourself.”  This is not that blog.

I’m neither here to scold you or tell you how you need to treat yourself better.

It goes without saying we know we come last, and you know what?  We’re okay with that, because we know our children need and deserve to come first.

But in the back of our minds, especially as our children grow and get bigger, we have this little imaginary birdie that sits on our shoulder that says you’re not getting any younger and you’ve got to give your body a little tender loving care in order to go the distance for your child with special needs.

For some we’re inspired to dust off the elliptical and treadmill that has sat in the basement for over ten years that you contemplated selling in a garage sale.

For others it means trying to balance a better diet because you know there is no way you have extra time to exercise beyond lifting our children’s heavy adapted medical equipment.

No matter what route we decide to take towards preserving and bettering our bodies for the sake of our special needs children the point is we’re all exploring our options.

The really great thing about social media is that it often puts things in your field of vision that otherwise wouldn’t be there.

I don’t make new year’s resolutions, so my personal interest in self-preservation and health had nothing to do with the turn of a new year.

Perhaps an unwanted birthday milestone was headed my way that made me realize that I needed to start giving thought to things I really hadn’t before.

My strength, my continued endurance, both my physical and mental health – as special needs parenting can take its toll on both.

I was seeking clarity in my thoughts; calmness in the continual special needs storms, peace, comfort, and personal empowerment.

I wanted to start to attempt to achieve my personal physical best for my child.

This had nothing to do with being overweight or underweight, or measuring myself up against the hottest twenty something in a magazine.  Just being the best me.

Like anyone I am sure I could have stood to lose five to ten pounds of lingering baby weight (who are really kidding?.. I mean stress weight) but that that wasn’t at all my primary reason for searching out ways to find my personal physical best that I could be.

As I was touring through social media some long time friends had started a new diet plan called Whole 30.

Thanks Tim and Sarah… (as you deserve honorable mention).

I was intrigued.  Tim and Sarah were making these Facebook live videos.  I was reeled in with how happy and healthy they were looking.  In fact, they kind of glowed and I’m not even exaggerating.

They documented their entire 30 days – they made it appear not completely easy but absolutely doable.

And it looked like a diet that a special needs mom with a heavy load on her shoulders could easily do. And let’s face it. We all need easy or at least easier…

I bought the book and researched the rules.  There were lots of guidelines and for a brief second I thought this could be the impossible mission to be successful at.

But then I remembered that we’re full of beating the odds in families like ours.  A diet plan wouldn’t be any different.

In the beginning you might be a lot like me.  You might think it’s cost prohibitive, or you might think clean eating is going to be complicated and time consuming to plan menus and grocery shop for, you might be worried that you’ll be a raging lunatic without your chocolate and sugar in your coffee.

But after you get all those things out of your head, you’ll realize that even the most time-deprived special needs parent can do it.

So what is Whole 30 exactly?  It’s a diet plan that excludes potentially inflammatory foods and beverages from your diet.

This means no sugars or sweeteners, alcohol, grains, legumes, dairy, processed foods and beverages, baked goods, and junk foods that we all love to swipe off the shelves in pre-packaged containers.

It is eating three clean meals a day with simply as the name suggests; whole foods. Ingredients such as fresh berries and fruit, eggs, vegetables, and meat proteins, and approved nuts and oils and ghee.

In the beginning the big picture feels a lot more complicated than it turns out to be. You’ll quickly find that finding ways to eat a bit simpler isn’t as hard as you dreamed it would be.

The hardest part for me was probably condiments and coping with the fact that I’d have to give up creamer in my coffee.

But, I quickly found creative Whole 30 approved ways around that with different products that had never been on my field of vision before like grain free granola, NutPods, Red Barn almond milk and last but not least Tessamae’s line of amazing condiments.

Now in the beginning perhaps a few more dollars went to replacing things like traditional Heinz ketchup in the refrigerator and dumping all those sugar cubes in the trash…

but I had faith that I was headed towards an improved me that would be healthier and stronger to go the distance so that I could take care of my child with special needs for as long as humanly possible.

Thirty-days goes by so quickly. The first few days admittedly were not a bowl of cherries. I still craved things.

I still wanted a piece of my child’s Valentine’s Day candy, I still wanted my Starbucks indulgent coffee and ached for a cherry danish and a Lamar’s chocolate donut.

But my body and brain started to forget what I thought I was missing and after a full week I no longer wished or wanted any of it, even if it was within arm’s reach.

I started to notice I slept better, when my child was sleeping I was able to sleep.  Something, I haven’t been able to do in maybe years.

After he fell asleep even for brief moments of time throughout the night I would stay up contemplating all that could go wrong if I so much as blinked in the night, or going over all the day’s prior special needs difficulties and problems that I was unable to fix.

I noticed my skin get brighter, my dark under eye circles were starting to diminish, I felt like I actually had more energy, and I was able to manage those special needs roller coaster moods a tad easier.

Of course the tears still happen, as they will for most all special needs parents, it was easier to come out of those tears for an equal amount of smiles.

My aches and pains were significantly less, and my muscles felt as if they rebounded slightly faster from all that special needs lifting. And at the end of thirty days I had extra bonus of an eleven pound weight loss.

While my physical appearance didn’t likely look tremendously different since weight loss wasn’t the primary focus, I felt different.  I felt better.

It was as if I had detoxed all the bad foods and habits from my system.

After thirty days the decision is really yours to decide what foods you felt best eliminating from your diet.

You can chose to continue on, adapt to a more Paleo style way of eating, or re-introduce things like sugars and dairy again should you chose.

For me, I’ve found while I can handle the occasional treat, that my body now completely rejects most of what I gave up for thirty days.

And I feel sluggish both inside and out if I try to go back to bad eating habits.

But whether you chose to give Whole 30 a try for yourself or chose a different food plan that you feel is a better fit – the truth of the matter is food has a lot to do with our personal health so that we can continue to be strong in all the ways we need to be for our children with special needs.

So do some light research for yourself, find a food plan or diet that you think best matches your needs and lifestyle, try something new and different even if just for 30 days to see if you notice any changes in how you feel.

You may be pleasantly surprised at what a small change in diet can do.

Thinking of the Special Needs Moms that are Struggling on Mother’s Day

You know inevitably your news feed is going to be filled with countless mothers posting pictures of sweet handmade gifts from each of their able bodied children, a doting husband who prepared breakfast in bed and showered her with a dozen roses.

And a follow up post about her excitement over afternoon reservations for Mother’s Day Tea at an exquisite restaurant followed by her family treating her to a trip to the spa at her leisure.

You’re much too tired to be jealous or have any tingling of envy.

You learned long ago that your life will in no way even come close to mirroring that of a typical mother – even on Mother’s Day.

Your Mother’s Day didn’t start with a cup of coffee from the local cafe, or even with your child being able to run up to you with their arms wrapped around you – because your child physically is unable to.

You ache just to hear the words from your non-verbal child say “I love you mama,” even more so on Mother’s Day than any other day of the year.

Your husband glances at you, as he’s no stranger to your all night parental care of a medically fragile child.

His admiration no less than any other day; but he aches to make you feel so incredibly loved even though he knows that motherhood has been much harder than any mother would ever wish it to be.

He wants to pamper you in all the ways you wish to be – and that you need to be… that you deserve to be.

But both of you know that special needs parenting has catapulted your family into financial distress and there is little to no room for store bought flowers, fancy reservations, or the bench you’d love to place out in the garden so you’d have moment to just breathe in between the hard spots.

On Mother’s Day, all other mothers are celebrating with such a display of public perfection that you wish you could look away.

Yet like a moth to a flame, you read on, post after post after post.

You remain incredibly happy for all of your friends, families, contacts and acquaintances that you know.

A part of you wonders if they think about what your Mother’s Day is like.

You don’t dare advertise the truth of it, as that would simply confirm the imperfection of your life to others.

The illusion remains that everything is ‘fine’ and ‘wonderful,’ even on Mother’s Day.

You feel forgotten, alone, and a bit sad.  You ache just for a sense of, “normal”, especially on Mother’s Day.

There is no better day of the year than to feel so incredibly cheated out what was supposed to be, how you thought it would be, how you dreamed it to be.

You don’t want the world to know you’re struggling so you pick silence.  There are no posts on social media from you.

You quietly withdraw hoping that no one will notice how incredibly different your Mother’s Day is from most mothers.

But even though you don’t post, or write, or advertise in anyway how your Mother’s Day is going, you don’t have to because I already know.  I know because I’m just like you.

And while my heart is tremendously full from the love and gifts that having a special needs child has brought into my life, I still wonder even years later the mother I may have been had I been dealt a different hand, and how differently I’d be celebrating Mother’s Day.

I know on each Mother’s Day isn’t what you’d imagined or dreamed it to be.

I honor your sadness and your simultaneous smile.  I know how special you are.

I know how hard you work to keep a small precious child alive.  I know you’re tired, and that your body, soul and mind ache.

I know how devoted you are to tasks and how complex your thoughts are.  I know that you think you need no thanks on Mother’s Day or any other day of the year.

I know you are the champion for your family.

And although your Mother’s Day will likely look different from the rest, you stand out as this amazing beautiful rose for all that you do, and all that you are.

Happy Mother’s Day, I’m thinking of you.

Keeping You and Your Little Ones Safe When travelling

Although we’ve travelled on numerous occasions we’ve only had one trip that didn’t result in a wheelchair catastrophe.

And that my friends isn’t great odds.

So what helped us score a completely successful wheelchair damage free trip?  Check out these 7 tips that helped us ensure a safe wheelchair departure and arrival.

1) Take Your Accessories With You

If your child’s wheelchair has any accessories that are removable take them off and board the plane with them.

This means a detachable sunshade, a soft undercarriage storage, a cooling or heating pad, a removable footplate cushion, or a wheelchair rain guard.

Anything that could easily be detachable or come off, take a bag with you and stuff it in there and throw it in carry-on storage.

There is nothing worse than getting to your destination and realizing that some of the pieces of your child’s wheelchair are missing.

And these accessories generally aren’t easy or inexpensive to replace and are generally much needed for your child’s comfort and safety in their wheelchair.

2) Don’t Fold It Down

This tip took me multiple trips to learn.  Even if your child’s wheelchair has the potential to collapse, fold or be broken down into two pieces (the base and the chair)… don’t do it.  I repeat don’t do it.

If you tell the gate attendants that this is as good as it gets and they can’t collapse it in any way – you just increased your wheelchair’s chances of survival by more than 80 percent.

No other luggage will be placed on top of it, they can’t stack or drag it.

While airlines will of course prefer you to fold it or make it compact in any way possible – you are no way obligated to disclose that your child’s wheelchair has that potential or ability.

So leave it just like it is – upright.

3) Discuss Past Damage

Remind the airline and gate attendants that you had past damage experiences and are really hopeful that this time they’ll get it right.

Don’t be shy, casually drop dollar figures like yeah it cost the airlines $8,000 last time to replace the whole thing because you bent the frame.

Make sure they understand the gravity of how precious and how expensive of a piece of equipment your child’s wheelchair really is.

And it’s okay to take slight pleasure in the shock you will see in their faces.

Everyone needs a little reality check now and again about the reality of a special needs family’s circumstances.

Be hopeful, and tell them that you’ve really got your fingers crossed this time that it will remain damage free.

4)  Get a Pre-Board Inspection

Not all airlines do this as standard protocol so make sure if you are flying an airline that doesn’t have a standard inspection of the wheelchair that you ask for one.

This is where the airline attendant will look over the wheelchair and notate any pre-existing damage or problems with the wheelchair so they can document if damage occurred during flight.

Make sure they know the great condition your child’s wheelchair was in prior to trusting them with it.

Generally this results in simple paperwork that you’ll carry with you.

5)  Tag It!
Most airlines are great about tagging wheelchairs at the gate.

They’ll tag it and give you a claim receipt so in case for some reason the wheelchair gets separated from you and/or lost that you have something to try to track it down with.

Some airlines get distracted and will fail to tag it, or in many cases they depend upon you to tag it yourself with tags that simply are available at the counter.

No matter how the airline handles it – just make sure it gets done.

6) Give a Quick 101

Wheelchairs are generally foreign items for airplane and gate staff.  Don’t forget to give them a quick 101 on how your child’s wheelchair works.

Show them the breaks and how to lock and unlock it.

The last thing you want is for them not to know how to drive it or lock the breaks and have it drug up to the gate with a multitude of mishandling damages.

7) Fold it In & Grab Those Tools

If your child’s wheelchair has any swing away laterals or footplates, make sure you fold all features in.

This will help insure that none of those features are bent or are injured during flight.  There is nothing worse than realizing that the airline has bent an accessory that you lack the ability to easily fix.

Likewise make sure you travel with the wheelchair’s Allen Wrench kit so that if you need to make adjustments during travel you can easily do so.

And after you get all those pre-jitter worries set aside about your child’s wheelchair remember to just relax and have a great time getting to and from your destination.

Happy Wheelchair Travels!

Special Needs Parents Need to Absorb Your Positive Energy

For instance being around an exceptionally bubbly, optimistic and humorous friend can bring the other friend out of a sad and depressed state and vice versa – a overly sad friend can bring down the happy friend under certain circumstances and conditions.

As human beings we all draw energy from one another like sponges.

We absorb the energy around us no matter what that energy is giving off.

This often can cause many people to become uncomfortable when they are within a certain groups of people who have a mixture of energy and emotions – as they are doing their best to filter that energy and decide on what they’re absorbing.

So why do we absorb the energies of others around us?

Theorists believe that this is common because we crave feeding our emotional state, and we often feed off of the emotions of others – however healthy or unhealthy that may actually be.

This also can account for why people can change their moods often multiple times throughout the day.

And some people, like special needs parents can be hosts to several conflicting emotions often simultaneously or concurrently with each other.

A special needs parent be stressed, angry, overwhelmed and anxious, and at the same time be optimistic, and joyful.

We are a spectrum of emotional fun.  (Enter sarcasm).

And in knowing this, it often detours people from wanting to be our friends and either let our energy rub off on them, or allow us to feed from their energy – whatever that may be.

Our energies as special needs parents can be intimidating – and come from a place which is hard to understand.

While I can assure you that the large majority of us are not bi-polar, we do rock our emotions from one end to the other – almost all day long.

Perhaps a coping mechanism, but really because we’re in touch with the emotional expressiveness that this journey takes on caring and parenting children with special needs.

But you will find that if you can isolate a special needs parent into a favorable energy space with another person that they’ll be more hopeful, optimistic, uplifted and refueled faster and more quickly than if they had no positive energy source or person in their lives.

Likewise the same is true if you take a special needs parent and put them into an energy space with a grieving person, a depressed person, or one that is continually pessimistic about all circumstances and situations – you will see that special needs parent fester feelings and emotions that are less hopeful and even emotions that could be considered less than being in productive space.

Knowing that we all crave energy from each other, and that we all can absorb both positive and negative energy – how can one best help be the best energy source for a special needs parent?

Make a conscience effort to be in a good space with a special needs parent.

While offering them a sincere listening ear – also offer them great laughter, humor, fun – a cheerful presence with lightheartedness.

Certainly, it’s more than okay to offer them a mixture of understanding and compassion about the gravity of the situation, but let them feed off of any positive you can throw their way.

It refuels the balance of the roller coaster of emotions that they go through in a single day.

And at the same time, don’t shy away from a special needs parents because you fear their energy.

While our energy is unique and often unbalanced, our energy has the potential assist others with both empathy, compassion and patience.  Don’t be fearful of our type of energy.

It’s often so across the board and we can’t always help where our emotions take us.

It’s hard and complicated and something that we try to be gentle with ourselves about.

So make an effort to offer and throw some positive energy in the direction of a special needs parent.

Guaranteed they are craving it and need it to refuel them through all the difficult moments and stages that come along with their children.

You had the potential to be a rainbow in their clouds –

“The human body is very similar to a plant that sucks, absorbs the energy needed to feed your emotional state, and can energize the cells and increase the amount of cortisol and catabolize, feed the cells depending on the emotional need. ” continues Bader-Lee.

That is why many people can change their mood which leads to being nervous, stressed, angry, anxious, sad, but also happy, optimistic and laughing.

Let’s talk About Special Needs Dads

It’s typically the special needs moms that are on the front lines.

We’re the lioness that roars if so much someone thinks about trespassing against our child, we’re making appointments, coordinating medical and adaptive equipment, we are generally the researchers and giving ourselves our own medical degrees specifically related to our child’s wellbeing.

We juggle everything in a day, our child’s needs, household chores, often times taking on additional roles with home-schooling and home therapy homework activities.

We’re nothing short of amazing.

But the dads – although perhaps sometimes taking a quieter role are no less than extraordinary.

We don’t talk about them enough.  They are in the background being the backbone of the family dynamic.

Often the unsung heroes that don’t nearly get the recognition for the distance they go to in order to be the very best dads possible.

They make countless sacrifices for their child with special needs and their families.

You will rarely ever ever hear a special needs dad complain.

They are the bricks that won’t fall, the shoulders moms need to cry on after numerous insurance defeats, the dads that carry the small bodies of their children on their backs, who are their voices when they cannot speak, who aim to show them the world despite physical limitations.

There is so much that special needs dads must give up.  First it’s the dreams for their child, then they slowly abandon their own dreams, goals and hobbies.

You’ll see race cars and hobby cars just sitting in garages that won’t run because there is no money or time any longer to devote to them.

You’ll see projects around the house maybe go unfinished or take longer to repair because they are more focused on building their child’s speech mount or trying to make an accessible ramp.

They are just as tired as the moms yet most bravely go off to work and bring home as much as they  can to continue financially providing for the family all the while their thoughts never waiver from the challenges and struggles that exist at home.

They pack more love in their hearts than one could ever imagine.

Sitting down in front of the television to watch your favorite shows, or off to have a night with out with the guys doesn’t happen.

They instead remain devoted to spoon feeding their child who cannot feed themselves, taking over for mom so she can sit down for twenty-minutes, dive into eight basketfuls of laundry because medical needs create more to wash.

Complaining is never in their cards, nor do they wish it to be.

Their child with special needs has become the center of their universe and they willingly and lovingly will go any distance to make their child’s life the best and brightest that it can be.

They have re-crafted their own dreams and hopes for the future.

And they never look back with regret nor remorse for the dreams they left behind.   And they may think that we moms perhaps never notice.

But we see and recognize it all and know that it’s the dads that help fuel us moms to be able to rise to the occasion every day and keep on keeping on.

Dads also are extremely creative and find loving ways to juggle all the needs that all of their children with different abilities have.

They can easily balance the act of building a puzzle with their typical child while assisting the other with a speech device; teaching one child to hit a baseball, while suiting up with the Upsee to help the other kick a soccer ball.

Special needs dads are a bit unlike special needs moms in that they generally grieve internally.

Special needs moms tend to be more vocal in their pain and in their joy, the struggles and difficulties that come along with special needs parenting.

You will rarely see a special needs dad participate or discuss their feelings openly in any support setting.  They process it all very differently but it still exists for them equally as a parent.

The pain is equal, the joy as profound, and the challenges just as obvious.

Yet how they carry the load is simply stoic.

Special needs dads are incredible people.

And even though they may not demonstrate the need, they are so deserving of a genuine friendship hug or a man to man pat on the back, someone to say that they see them even though they too often feel invisible on the journey.

To tell them that they are proud of the strong men that they are and the tremendous devotion and love that they pour into their families and children with special needs.

To remind them just how extraordinary they truly are.

Confessions of the Overly Organised

All the special needs moms perhaps in slight competition with each other.

Measuring their self-worth, accomplishments and mothering up against one another.

The dads gathering to around just waiting on the moms to give them direction and a task to complete.

While the episode was comical and perhaps exaggerated just a touch, it made some very valid points and was true to form on special needs parenting dynamics.

A new mom came into the support group.

She arrived bearing a hostess gift of a homemade cake with a handmade decorated box for the cake.

It immediately put the rest of the moms on high guard.  With lives that are so complicated most special needs moms struggle to accomplish making their lives resemble anything that looks like it’s in order.

So, when a new member comes into the group that seems to be able to do it all… makes the rest of the group feel inadequate.

This inevitably leads to tension when they relocate the special needs mom gathering to the new mother’s home only to find that her home is overly-organized, spotless and beautiful.

The rest of the special needs moms twinged in a big way and their feelings resulted in resentment and conflict towards the mom that appeared to be able to do it all – and do it perfectly.

And as I was sitting there watching it, I felt a tad guilty because I saw myself in that overly-organized mom.

It’s not because I can do it all, because I certainly wish I could, but can’t.

It’s not because I’m trying to be better than the next special needs mom, or that I think I’m in some way perfect.

My confession is that being overly- organized has become my coping mechanism, if you will, for coping with the stress of special needs parenting.

When your child’s diagnosis feels out of your hands, situations feel out of your hands, when you have zero control over things you wish you did – the only thing sometimes that relieves that stress or provides a moment of comfort is finding power over something you can control – and in my case that happens to be cleaning and organizing.

It’s the one thing I can control or fix.

So maybe my house sometimes looks like no one really lives in it or puts their feet in the couch (although I assure you that does happen), or maybe that my cabinets look like a picture on Pinterest, or that my closets are color coordinated and sorted by season.

But that doesn’t mean that I’m trying to display a show that I am in any way better than the next parent.

It’s simply become a comfortable way for me managing personal stress.

So the next time you’re measuring yourself up against another special needs mom, whether she seems to have the world put together, or one that has a dishevelled and messy home, remember we’re all on the same playing field.

We’re all doing our very best with some hard circumstances.

We juggle a lot and how we each handle things or how we cope will look differently.

Some moms turn to chocolate, some become compulsive exercisers, some over-organizers… none of us are better than the next nor are we trying to be.

Sometimes all we are doing is just trying to add order to our lives that feel like they can be chaos.

Be gentle and easy on yourself for whatever your “vice” is.

We all have one.  We all create it to help us get through the day.

And remember not to be critical of someone else’s way of finding order, or giving themselves a small piece of comfort.

We are all just as special and unique as our children are.

15 New Years Resolutions for the Special Needs Parent

1) I will try to get some fresh air everyday.

2) I will allow treating providers and therapists to have less of an impact on my emotions and will not take their lack of confidence in my child to heart.

3) I will spend one day a week in my pajamas and not feel an ounce guilty about it.

4) I will search out new avenues of support and assistance and focus less on the dead-ends knowing something good will come through a new door.

5) I will organize and go through old paperwork and purge documents that are no longer necessary or relevant to my child’s care.

6) I will re-evaluate my child’s team and decide if a new doctor, therapist, care provider, durable medical equipment provider or specialist needs to be replaced.

7) I will be gentle with myself and be less critical if I can’t get it all done in a day.

8) I will treat myself to a time-out.  Maybe that means I’ll paint my nails, read a book for 15 minutes, or sit down and finish a cup of coffee.

9) I will only check Web MD once monthly and not try to diagnosis new symptoms online.

10) I will work on quick comebacks for the insensitive comments that others say about my child with special needs.

11) I will find more joy than sadness even during the really hard and difficult times like insurance denials and government benefit battles.

12) I will do my best to accept invitations to get out into the community even if that means joining a friend for a cup of coffee.

13) I will not invest my time and energy to get family members and friends to accept our situation and will cling to those who already understand.

14) I will insist on second opinions about negative news and verdicts about my child’s health.

15) I will designate one day a week to no therapies, appointments or schedules to allow our family to enjoy each other’s company privately.

The Nightmare of Holiday Shopping with a Child Who Has Special Needs

Oh no, I have to go Christmas shopping with my child with special needs.

This is where you enter a lot of frustration and you haven’t even left the house.

The anticipation of loading and unloading a wheelchair in a skiff of snow makes your fingers instantly numb.

There’s the fact your child really hates coats and dislikes shoes.

And that the gobs of holiday shoppers will gawk even more than they do on other days out.

Thoughts of long lines makes you sweaty and itchy because you know it means that your child will be on sensory overload is bound to gag and potentially vomit, then cry uncontrollably for doing so because he can’t control it.

You’ll scramble for klennex, or the sleeve of your coat, but not before sanitizing your hands because you touched a grocery cart or something on the shelf last and may introduce a life-threatening germ otherwise.

You’ll purposefully flee to the other side of the store if you so much hear another child coughing.

You know you can’t possibility spring to the isle that has a Hatchimal or NES Nintendo Classic because well you can’t run people down with your child’s wheelchair and know that in the event it was damaged by psychotic shoppers insurance would take years to repair it.

Then you get to the depressed stage – you’ll cruise isles gathering ideas or trying to prompt your non-verbal child to give you a clue as to what they’d love for Christmas.

Just like the year before you spend way too much time in the baby toy section – even though your child should have developmentally outgrown that section many years ago.

And while his mind has, his physical abilities have not.

You egg him on to knock over a toy that he has an interest in off the shelf with his athetoid movements and high extensor tone.

He does only to get a multitude of stare downs from other parents and employees who then quickly look away once they see the wheelchair and assume you simply drove him into a pile of toys carelessly.

The check-out lane.  The finish line.

But wait.  Not really.

The lines are four people deep, each filled with carts to the brim.

The are people behind you and you’ve just started putting your items up for the cashier when the person in front of you demands a price check… and then a recheck… and then has to stand and silently to think about it attempting to make the cashier uncomfortable enough to just say it’s free now please go away.

All the while your child with special needs has started to scream because they are less than thrilled with the behavior of the customer in front of you.

You just want out of the store.

You’re even willing to leave what little treasures you were able to score behind.

You just want to go home.  Retreat for your sanity.

You’re pinned and have nowhere to go other than to stick it out until the end.

You finally get your items rung up and you whip out that debit card faster than you can say, “Happy Holidays.”

And just like that you’re gone with the wind.  A blazing blur out of the store.

You get to the car and think to yourself – I finally understand the true meaning of a Nightmare Before Christmas and vow to finish out the year with online shopping.