• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

“Why Won’t Mum Stop This Hurting Me?”

“Why Won’t Mum Stop This Hurting Me?”

It started just like any other day.

I woke up in a good mood, I won a wrestling competition with Daddy on the bed, and had a yummy bottle of milk.

Mummy gave me some nice breakfast and got me dressed.

I shuffled over to Daddy ready for him to take me to nursery but he kissed me goodbye and went on his way to work.


Oh well, perhaps today is a hospital day, I thought.

I was right.

Soon after, Mummy got our stuff together and we set off in the car.

I was playing happily with my musical book but I noticed that Mum wasn’t chatting away with me like she normally does.

It had been a much longer journey than usual to the hospital…

I babbled to Mum that I was getting a bit stiff and bored sat in the car seat… but we seemed to have finally arrived.

I looked up and realised this wasn’t our usual hospital.

Mum didn’t seem to know where she was going as she pushed me along the corridors.

She was definitely behaving a bit strangely today, so I tried not to whinge too much.

We went into a room and there was a man that I don’t remember meeting before.

He talked to Mum for a while and I bottom-shuffled around the room exploring.

Mum kept telling me off but I couldn’t help it, there was too much exciting new stuff to put in my mouth and throw across the room!

There were bandages, and some feet made of white plaster, and a real skeleton dangling in the corner!

The man went off and came back with a big white thing with straps.

Goodie, I thought, another toy to play with.

Mum scooped me up onto her lap, where she was sitting on the hospital bed, and opened a story book.

The man brought the new toy towards me and I reached for it excitedly.

But he grabbed my wrists, pushed my arms up and pressed the cold plastic around my body.

Ouch! It hurt but Mum didn’t stop him.

She held me really tight so I couldn’t get away from the horrible man.

It was really hurting now.

I cried out to make him stop but no one listened.

He pinned me down on his lap and pulled the white thing all the way round my body, and he was tugging on the straps at the back.

Why was Mum letting him do this to me?

I cried louder.

Mum gave up trying to read me the story.

The man flipped me over so I was on my back and I was struggling to take deep breaths.

This was so horrible, why wasn’t Mum doing anything to stop this?

I had tears streaming down my cheeks.

I looked up and saw that Mum did too.

The man left the room, mumbling something about ‘getting used to it’.

Mum pulled me in close to her, and I could feel her moving her hands around, trying to find a bit of my real skin to cuddle.

The plastic was covering most of my front and back.

Her tears dripped onto my bare shoulders.

Then she sat me on the cold, hard floor, and I immediately wobbled backwards.

This thing wrapped around my body was pulling me upright and I couldn’t keep my balance.

Mum propped me up again and I tried to stay sat up.

My usual method of movement, shuffling on my bottom, was really uncomfortable.

It was difficult to even reach the floor with my hands as the stiff plastic was digging in to my armpits.

I toppled forward, and planted my face on the floor.

Mum scooped me up and we were both still crying.

The man came back into the room and prodded me, rolled and manoeuvred me around again, and finally, took this thing off me.

Phew, I thought.

That was horrible, but it’s over now.

Mum and the man talked for a while longer and then he put the white object in a bag and gave it to Mum.

Back at the car, Mum put the bag next to me on the backseat.

It remained visible out of the corner of my eye and I found it hard to take a nap, knowing it was there next to me.

I must have slept because the next thing I knew we were home and it was lunchtime.

After lunch, Mum and I played with my toys for a long time.

Mum was being extra nice to me, lots of cuddles and laughs and tickles and all my favourite games.

She even let me watch my favourite videos on the iPad!

I was really pleased to see Daddy when he walked in the front door that evening, and I could tell that Mummy was pleased too.

They had an extra-long cuddle, but then Mummy started crying again.

Dad and I played with my planes and dinosaurs, and then Mum came into the room with the big white object.

I shrieked to warn Dad that it wasn’t a toy, it was for hurting people.

Mum took off my t-shirt and brought the thing towards me, like earlier.

I heard the evil crunch of the velcro as she wrapped it around me.

I struggled and wriggled.

I realised then that I needed to be brave, to show Daddy that I could be a big boy.

And I really didn’t want Mummy to cry any more today.

I sat still while Mum and Dad fussed over the straps.

When they were done, I looked down and inspected my new jacket.

It wasn’t so bad, in fact, I already felt straighter and more supported.

I showed Daddy how I could still bottom shuffle with it on, but I could see he was disappointed about how slow I was.

He put me on my ride-on car and I propelled myself forward; phew, at least I was still able to ride my vehicles!

I realised that the best thing to do was to be brave and not cry or make a fuss.

After all, it wasn’t so bad, it was actually quite comfy, and I bet none of the other kids had a shiny white shell like mine!

Mum took it off me, and we had tea, bath, story, snuggles, and bed.

I might have been imagining it, but I think Mummy and Daddy were being extra nice to me.

I got an extra-long go on the iPad and custard for my pudding!

Well, I must remember to be big and brave every day, if this is what happens!

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Emily Sutton

Meet Our Blogger

I was launched into the world of special needs on New Year's Eve 2012, on the birth of my son, Jenson. He is fabulous, sprightly and loving, and has redefined our lives. I am now a 'qualified by experience' therapist, clinician, secretary, taxi, PA, nurse, and in my spare time I am trying to be a good mummy. I am an auditor for the NHS and along with my husband run an accountancy business from home. It's a busy household but Jenson's extra genetic material seems to have given us all extra special powers!

View Emily’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...