• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

When His Disability Is No Longer, “Cute”.

When His Disability Is No Longer, “Cute”.

We were told amongst many things that he would most likely need assistive devices for walking, possibly breathing, and have no quality of life.

I remember being pregnant.

As each day progressed, the more the fear inside me grew.

I did not fear having my child, because there was never a point after his diagnosis that I wanted to take the doctors’ up on the abortion they kept pushing me towards.

Honestly, my fear stemmed from me not knowing or being able to picture what my child would look like.

It was almost like my thoughts came out of some alien movie. I knew my child would come out a human, with the previously counted ten toes and ten fingers. Two eyes, a nose, mouth etc....

Yet I could not picture what he would look like with everything pushed into my mind like breathing equipment, assistive devices.

I mean, what does someone with, “no quality of life”,  look like?

This was never something I prepared for in the baby books I read, or even anything I saw in the medical books I studied while in college.

But time went on, much shorter than planned, and Oliver came just shy of 31 weeks gestation. Everything I had feared vanished into thin air.

Now, in my hands, I held the most beautiful baby I had ever laid eyes on.

Here we are, three years later, and I still get compliments almost daily at how handsome my Oliver is.

He sports the blondest hair you've ever seen alongside ocean blue eyes.

Intellectually, he speaks above average for his age, and that just adds to his cuteness.

Whenever we are out and about, zooming in his wheelchair, I never fail to hear the sighs and, “cute”, compliments.

“Bless his heart, he is adorable.”

“Wow, look at that smile!”

“Awwhhhh, look at him in his wheelchair!”

They go on and on..

But what happens when he gets older, and isn't a tiny three year old in a wheelchair?

People will no longer be shocked to see such a small child mastering a wheelchair, but just a teenager or adult in one.

The, “cute”, compliments stop coming and I fear the worst..

The rude comments, the stares, possibly even the bullying.

I know I have a ways to go and am hopeful I can teach my son to handle any situation properly.

However, with the news we see nowadays, a worried mom can’t help but do just that.....worry.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Brittney Baumgartner

Meet Our Blogger

Mother to 3 boys, who are getting older by the second. Married to my best friend, Aaron. Living life day by day, in this rambunctious yet blessed household.

View Brittney’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...