Language
  • English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

V Is For Voice

V Is For Voice

But then there have been the odd occasions, the seemingly random pure miracle moments when we have heard her voice.

Not the joyful babble, or that constant stream of jumbled consonants and vowels that resembles a difficult round of countdown, but an actual voice with words.

In seven years here is what she has said:

“Elephant” whilst sat on my lap at Grandad’s and looking at a copy of a colour supplement I pointed to a photograph of one on the cover and she repeated my word. Only once mind and nothing else after that.

“I’m a good girl” whilst sat on my lap the day before my sister-in-law’s wedding. Luckily my husband walked into the room at the time and heard her, otherwise I doubt he’d have believed me.

“Yes” shouted emphatically into my mother’s face when she asked Lucy if she was bored, my poor Mum promptly burst into tears.

“Yes” shouted straight into my husband’s face when he asked if it was time for her to go to bed.

“More” for her favourite petit filous fix, but she has since given up saying it verbally and now signs “more” in Makaton instead.

“Love you” which punctured the air like an arrow at 4am on our first night on holiday when my husband and I were so shattered with her staying awake all night. Needless to say we forgave her instantly!

“Really?” said this weekend as she was sat in her activity chair in the kitchen. I was unloading the dishwasher and nattering to her about our plans for the day ahead.

Lastly, and perhaps most surprisingly...

“Planet Earth!” whist watching Mr Tumble (or rather Justin) on the TV as he and two children went to the Planetarium.

She repeated their words and I very nearly ironed over my hand that was gripping the ironing board in shock.

When she speaks, or shouts, it is with a clear little voice free of any impediments and quite grown up. #

It happens very infrequently, seemingly randomly and she won’t repeat it so I can’t film it as proof!

I think it’s odd, to say the least, that she clearly can hear, understand and form words not always in repetition but in answer to a question. It’s “odd” because all the evidence from her speech and language sessions would suggest she is way, way behind being able to do this.

As beautiful as those moments are, they are also frustrating as, if it’s possible once why isn’t it possible always?

I battle with feeling hugely grateful that I have ever heard her little voice at all, with feeling angry that there must be a way of helping her to speak daily.

It would make all of our lives so much easier.

I guess we will just have to wait and see what happens, time as they say is a great healer.

We have all the time in the world (or planet) for her to find her voice.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Sam Bowen

Meet Our Blogger

Hi I’m Sam, Mum to Lucy who is has complex special needs but is the happiest person I’ve ever had the pleasure of meeting! I own Hip-Pose Ltd, a brand of clothing I designed for babies with hip dysplasia (which Lucy had). I’m also a fundraiser for her school PTA and in my spare time (if I get any!) I sew and make crafty stuff.

View Sam’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...