Language
  • English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

Top Five Ways to Create an Awkward Moment with a Special Needs Parent

Top Five Ways to Create an Awkward Moment with a Special Needs Parent

Here are five ways people have created an awkward moment for us by something they’ve said or done:

One

Peer over our son’s stroller, who has poor muscle tone and preferred turning his head to the right as a baby, and say hello.

Snap in his face and turn his head yourself saying, “I guess you don’t want to look at me, huh?”

Two

Walk right up to us at the state fair, look at our son in his stroller, and ask us if he has a disorder of some kind. (Really?!)

The woman did go on to explain she has a granddaughter with cerebral palsy and worked with children in hospitals years ago.

This can be a startling question, however, when you aren’t expecting it from a complete and total stranger.

Three

Ask if we have seen a such-and-such doctor….neurologist, physical therapist, naturopathic doctor, etc.

Of course we have!

We want our son to get the best care, medical attention, intervention, and plan of action as possible.

Four

Ask how old our son is, and upon hearing he is two, go on to tell us about what a fun age two is.

They really start to express themselves, show their personality, and on and on and on.

This is a tough situation as a parent of a child with special needs because you don’t care to explain everything to them, and you aren’t quite sure what to say.

So far in our experience we have seen that people just assume everyone has healthy typically developing children.

They mean well, but don’t consider the fact that or son may not be expressing himself, running around, and wearing us out like someone else’s two-year-old.

Five

Make comments about our son being a little snuggle bug, so tired, a sleepy little guy, not quite awake yet, etc.

Because of our son’s low muscle tone it’s very difficult for him to pick his head up when we carry him, so he typically has his head on our shoulder, thus putting him in a position where he looks like he’s going to sleep.

What I really want to say to people following their comments about this is, “HE HAS A MITOCHONDRIAL DISEASE AND CAN’T PICK HIS HEAD UP!”

But that would be awkward, wouldn’t it?

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Angelyn Harrenstein

Meet Our Blogger

I am a wife and mother to two children. I believe there is always, always, always something to be thankful for.

View Angelyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...