• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

’Tis the Season to be Anxious

’Tis the Season to be Anxious

It’s almost that time of year. The time of year that most of us either love or hate.

If you’re a summer person who loves nothing more than basking in the warm summer sunshine or enjoying late night barbecues and beer garden antics then now is the time for you to pop into hibernation for the next few months  If you’re a winter person then you’ll probably already be counting down the days until the nights draw in earlier, ready to the enjoy all the seasonal fun that winter has to offer. Halloween, bonfire night and of course (is it too early to say?) Christmas.

Then there is a whole different group of people who don’t just wish they could hibernate around this time, they wish they could wrap themselves and their whole family safely into a germ-free bubble whilst still being able to enjoy all the wonderful things this time of year has in store. They are filled with anxiety and dread about what the coming months will bring for them. That group of people are parents of children who are medically very vulnerable.

The reality is this time of year can be the difference between life or death.

It may sound extreme but so many medically complex children are lost to illness or infection around this time of year because their already compromised immune systems are simply too poorly to fight them off. It’s a grim and terrifying thought. This inevitably brings so much stress and anxiety to so many families who will do everything in their power to keep their children healthy.

It’s difficult to find a balance between keeping your child wrapped in cotton wool to ensure their safety that results in them missing out on so much fun that this time of year brings or living your life with your child as close to normal as you possibly can which brings with it a risk of frequent hospitalisations and a need for regular breathing intervention.

I wish I had the answers, of course we all know our own children better than anybody else so nobody can tell you what is best for your family and your circumstances more than you already know yourself. We know their limitations and we know what poses the greatest risk to their fragile health.

Our last two winters have been incredibly tough. The first winter Jaxon was just six weeks old and spent six weeks in hospital from November until January. His first Christmas, his first new year, it was all celebrated from the confines of a hospital cubicle. It was difficult but we tried our hardest to make the best of a bad situation. Last Christmas was marginally better however the lead up to it was somewhat difficult. He had five separate hospital admissions between October and January. He was admitted to hospital the day before Christmas Eve and was discharged on Christmas Day early in the afternoon. So I think it’s quite understandable that I’m less than excited about what this year will bring, especially given the current climate we are all finding ourselves living in.

I ask myself whether the current restrictions we are all living under will lead to a better outcome for Jaxon and all the children like him. Or will the fact he’s been so heavily shielded for over half the year have negatively impacted on his already compromised immune system.

Only time will tell.

What I do know is that whilst I’ll do whatever it takes to keep Jaxon as healthy, safe and well as I possibly can, he’s already missed out on so much and I desperately want to rectify that. I just hope that even if we can’t avoid a virus causing him issues, he will still get to spend less time inside a hospital and more time in his own surroundings. He deserves to enjoy the magic of winter and I’m cautiously optimistic that this year, despite everything going on, might be our best one yet. After all they do say third time lucky.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Emma Louise Cheetham

Meet Our Blogger

I live in Stockport, UK. I have Borderline Personality Disorder and Generalised Anxiety Disorder. After years of therapy and getting back on my feet I became a voluntary peer support worker supporting others with mental health issues. Then Jaxon arrived and my life changed forever.

View Emma Louise’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...