• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

The Struggle is Real

The Struggle is Real

What started out as a bit of a cough and snuffle has rapidly developed into a very nasty bug indeed; he’s already on antibiotics for an infection and we are horribly aware that if he doesn’t show signs of picking up soon then IV’s will be necessary.

This is not a route we would like to go down, mostly because I don’t want to see my boy that poorly and secondly because Sam hates having IV’s (he’s brilliant at removing them… honestly, it looks like something small has been slaughtered).

While we can do something about the bacterial infection, a virus just has to run its course; calpol and ibuprofen being dosed regularly.

But one thing we have no control over are Sam’s seizures. Today my poor, poor little chap has been battered by them.

As we’ve entered the evening, my boy is twitching, jerking and lashing out with the seizure activity, tears rolling down his beautiful little face. And I am utterly powerless to do a d*mn thing about it to help him.

For all those who love someone with epilepsy or any other form of seizure, the struggle to know how to help is most definitely real.

Its times like this when you realise the comfort that a cuddle from Mum or Dad can bring – Sam loves his cuddles, always has, and while Mum is usually preferred for general snuggling, I struggle to hide my emotions seeing my boy suffering like this, so its Daddy he wants to be held by.

Daddy is his hero; strong, calm and always there when he’s needed.

I read something on Facebook the other day, the nights are long but the years are short.

And its spot on; when my child is unwell, frightened, or just sobbing and I don’t know why or can’t help, the minutes drag by like hours and the hours feel like days.

And yet, in a matter of weeks my tiny, early baby boy will be 7 years old. It only feels like yesterday that I first held him, utterly exhausted after 13 hrs of induced labour but completely elated and helplessly in love with this little person.

It doesn’t matter if you’re the parent of a medically fragile, complex little warrior like Sam or a neurotypical, healthy child; the strength of a parents love can move mountains when needs be.

But this evening, I’d settle for being able to comfort my little boy so he can finally relax enough to get to sleep.

The struggle may well be real, but even superstars and their parents need to sleep, sometimes.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Carolyn Voisey

Meet Our Blogger

Mum to one incredible little dude, I work full time in higher education and have my own small business as a jewellery designer/creator. I love nothing more than having time with my family, being outside and with my animals (chickens, cats, dog..!).

View Carolyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...