• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Learn More
Back to Firefly Blog

Special Needs Mom: This is My Story

Special Needs Mom: This is My Story

My little warrior comes in a small package. The blondest hair you’ve ever seen, eyes as blue as the ocean, and a laugh that can turn any head!

His name is Oliver, and three years ago he was diagnosed with spina bifida. At about 20 weeks gestation, my husband and I received the diagnosis for our boy.

We had in fact, just found out the gender of our little bundle two days prior to receiving his diagnosis.

Everything had seemed to check out as it “should” on our ultrasound with an extra part that confirmed we were having a boy. Lol!

I clearly remember the phone call in which my doctor had told me that my blood work came back and showed my AFP (alpha-fetoprotein) levels were high which meant I was at risk for my child having a neural tube defect.

I remember the reassurance he gave me, telling me that it was probably nothing but I needed a second ultrasound at higher levels to make sure.

In fact, everyone told me I likely had nothing to worry about. “Most test were wrong during pregnancy, due to high false positives.”

So, I did what anyone would do and brought my husband, mom and dad, brother AND sister to my Level II ultrasound. Joking away, I awaited my name in the waiting room with everyone.

Finally the time came and my parents and husband went back with me. About an hour later, I was escorted out the back door because I was crying uncontrollably.

We received the news everyone told me would not be possible. My son, my baby’s spine had failed to fully close in the first four weeks of development.

My Oliver, was diagnosed with spina bifida.

I allowed myself one day to grieve and cry until I could cry no more. The day after, I knew I had to only follow the good and meet families who were in my shoes.

We have taken the bad and hard days one at a time, but always try to maintain a level head. In that one moment that we received his diagnosis, I can honestly say that it seemed like the worst day of my life.

I remember not knowing how to proceed with life knowing that my son has spent his whole life fighting and he wasn’t even born yet.

But with the Lord on my side, I can tell you that it has been the best thing to happen to me because I was blind to how precious life can be.

I am blessed to be called his mother and to call him, my little warrior.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Brittney Baumgartner

Meet Our Blogger

Mother to 3 boys, who are getting older by the second. Married to my best friend, Aaron. Living life day by day, in this rambunctious yet blessed household.

View Brittney’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...