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Payoff? Is it coming?

Payoff? Is it coming?

We’ve been through hell and back the past several months.

Sawyer’s hip surgery was anything but by the book and he ended up in extreme pain and with a severe case of pancreatitis.

We did this surgery to give him the best possible future.

It was a decision we didn’t come by lightly but we wanted to give it one shot.

It has been 3 months since surgery and Sawyer is only just now beginning to take steps again.

He still has muscle cramps and he still gets very sore but we can see the light.

Every day as a parent you make decisions for your child.

It can be small or it can be a large decision but they are equally important for your child’s well being.

It’s the repercussions of those decisions that vary.

We met with our orthopedic surgeon yesterday and Sawyer’s ball joint is DYING.

He says that this is normal after a big surgery like he had and it will regenerate but he may have some stiffness and pain in that joint for up to a year.

He also mentioned that his increased muscle spasms is normal and can last much longer after surgery since such a huge surgery threw his body out of whack.

While we very much trust this surgeon it wasn’t easy news to hear.

It feels that although we did this surgery and he is improving, he may still have a long journey to being back to normal.

Our biggest question we have is “When is the payoff coming?” Will he get back to himself and then we have to do another surgery to remove the plates from his femurs.

Will there be a payoff or will this have been a long and exhausting band aid fix for the bigger problem, his cerebral palsy.

We are heading to an intensive therapy in April and we are excited to see the flexibility and movement that we will see after therapy.

Even if Sawyer feels better and learns how to move his body in a way that works for him we will be happy.

He brings us so much joy each day and the least we can do is give him every opportunity to thrive.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Francie Khalaf

Meet Our Blogger

I am a wife and mother of two children with cerebral palsy. I believe in making lemonade out of lemons.

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