Language
  • English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish

Insurance Funding Request

Did you know Firefly products may be funded by your insurance?

Request Information
Back to Firefly Blog

Dear Cerebral Palsy...

Dear Cerebral Palsy...

I hate you. I hate you so much. You try and rob people’s ability, their chance at normality and independence.

I was first introduced to you when my son was just a year old, but you had already been there from the beginning, we just didn’t know it yet.

The part of the brain that controls coordination, movement and balance had already suffered irreplaceable damage from birth but we weren’t to find this out until much later on.

Those early days that we were supposed to be enjoying the precious time with our baby were spent worrying and wondering what was “wrong” with our child.

We spent hours, days, weeks researching and you kept popping up wherever I searched. It was like you were just screaming out at me. CEREBRAL PALSY.

After we were given the diagnosis, I’m not really sure how I felt.

I felt loss, I felt like I had just started grieving for the life my son wouldn’t have because of you.

From then on, the words “can’t” “won’t” and “will never” were spoken to me at nearly every appointment. The reason? Cerebral palsy. Of course.

But guess what… Cerebral Palsy does NOT control personality, it does NOT control ambition and it does NOT control determination and in fact, I believe it actually fuels these qualities.

I have learned so much since my son’s diagnosis, I have learned that he is in fact very able with some extra help, he can be more independent and he absolutely will be included in anything he wants to.

Cerebral Palsy has robbed him of his physical ability to be able to do a lot of things he should be able to independently.

But we will never give up on fighting against it, my son works so hard at his physiotherapy every day and he still goes to bed smiling every night, he is happy.

His cerebral palsy doesn’t upset him because I’ve never allowed it to stop him doing anything he wants to.

Cerebral Palsy, I hate you but I will never allow you to rob us of our happiness.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Amy Sweeney

Meet Our Blogger

My name is Amy and I’m mum to Wilson aged 3 and Ava aged 4. Wilson has cerebral palsy affecting all 4 limbs along with CVI but it doesn’t let it stop him! He loves playing with his big sister.

View Amy’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 6 months on

Purchases on $99+

US Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of $99+:

No Interest if paid in full in 6 months on purchases of $99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 6 month period.
  • No interest will be charged on the purchase if you pay it off in full within 6 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00.
  • Individual items that are less than $99 qualify for special financing when combined for a total of $99 or more in a single transaction.
  • Multiple separate transactions of less than $99 per transaction cannot be combined to meet the minimum purchase amount.

Purchases of $98.99 or less:

Buy now and pay over time with PayPal Credit when you spend $98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • If approved, we start you off with a minimum credit line of at least $250. See FAQs for more info.
  • For New Accounts: Variable Purchase APR is 25.49%. The APR is accurate as of 6/1/2018 and will vary with the market based on the Prime Rate (as defined in your credit card agreement). Minimum interest charge is $2.00. See Terms and Conditions tab for more info.
  • If you miss a payment your late fee could be up to $38, even less if it's your first time. See FAQs for more info.

Please wait...