Our normal isn’t so normal. But we label it as such.
When you ask parents what their idea of a luxury might be, you might think that special needs parents would come up with ideas grand and bigger than life.
That we’d ask for all inclusive vacations, a brand new wardrobe, a $5,000 shopping spree, or cosmetic surgery to erase the added worry lines from our face and bodies…
But in reality, you’ll find special needs parents wish for nothing grand, overly spectacular or even expensive.
I asked a group of special needs parents to tell me what their simple pleasures would be and here are their responses:
“Finishing 1 cup of coffee without having to microwave it four times before I finally give up and throw it out.”
“Just having the time and space to breathe, without fearing or knowing that I am needed.”
Matthew J. Cerrato
“Using my work PTO for an actual day off instead of a doctor's appointment!!”
Carrie Berry Paul
“Expensive iced coffee, and by that I mean a large, maybe a flavor shot, from Dunks or a regional chain, Heavenly Donuts.”
Nora Lyons Sauter
“I want a day to lay on the couch under a blanket, watching Netflix.”
“A quiet dinner date at home with my hubby. Simple... but impossible!”
Caren Sue Evans
“Shower and a hot cup of tea for me - pure luxury.”
In the face of adversity special needs parents wish for the smallest of pleasures.
Perhaps that comes from a place of wishing for all of their economical resources to go towards helping their children, perhaps they’ve come to understand what matters most in life, so small rewards feel huge in the larger picture of their days.
Perhaps we’ve learned the art of needing less so our children can have more.
When a special needs parent is born, a kind humbleness moves in.
And you’ll soon find special needs parents find happiness in small, unique and unexpected ways.
What is your simple pleasure?