• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

The Expense of Having a Disability

The Expense of Having a Disability

There is one topic I could talk about for hours and that is the expense of having a disability.

Sounds a bit strange but anyone who has a disability or a child with disabilities will know exactly what I mean.

My son needs a lot of equipment, he can’t yet sit up or move around in any way on his own so as you can imagine, our house is full of different pieces of equipment to help him be able to play, eat and do anything he would like to really!

Luckily, we have the amazing NHS to provide us with some of these but there’s a lot they can’t.

He needs a therapy bench so I can do his physio at home, we really couldn’t do without it. A bench.

Seems pretty simple right?

I asked his occupational therapist about getting one and she said this is something I would have to purchase myself as unfortunately it’s not seen as “essential” so after a quick google I was shocked, HUNFREDS of pounds, for a little bench!

Now, I fully understand that with a lot of equipment for people with disabilities it has to be thoroughly tested and a lot of research is done into making these but some things I just can’t believe.

One example is a rain cover.

If I wanted to purchase a rain cover for the specialist pram that my son it is it was costing nearly £100, that was just for the cover too and didn’t even include the hood!

It just hurts me when there’s so much equipment out there to help but so many families who are having to try do without because they simply can’t afford it.

I just wish I knew why it was so expensive to have disabilities...

It sometimes feels like when searching online for a product and you type the word “special needs” it instantly doubles, triples in price.

I have come across a few amazing charities that help people access equipment they require but can’t afford and they do the most amazing work but there’s still a huge part of me that just wishes it was as simple to go out and buy something for my son when he really needed it.

There are so many different things that we don’t have that I know would help him and if breaks my heart that I can’t just go get it tomorrow for him!

Does anyone else feel this way?

Money is something we don’t often talk about, people often feel embarrassed to admit they can’t afford something but I felt like this was important to share.

There’s ALOT of parents out there that simply can’t go back to work due to their child’s disabilities and yes, there is carers allowance but that’s nowhere near enough to be able to not only live on but also purchase items for the child to help them with their therapies and just in general, and as a parent, that truly hurts.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Amy Sweeney

Meet Our Blogger

My name is Amy and I’m mum to Wilson aged 3 and Ava aged 4. Wilson has cerebral palsy affecting all 4 limbs along with CVI but it doesn’t let it stop him! He loves playing with his big sister.

View Amy’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...