• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Social Media and Memories

Social Media and Memories

Social media can either be my best friend or my worst enemy.

Looking through old memories can bring back so many lovely times and show just how far Ethan has come, or it can show skills that Ethan used to have and now doesn't.

Life is so rocky here, you never know what you're going to get dealt next. We live life a day at a time and treasure every moment, but it's heart breaking to see Ethan loose so many skills that we spent hours encouraging him to gain. Every little milestone is celebrated and it's always so exciting to see Ethan exploring his body and using it in new ways. I'm always mindful that the new skills won't stay with us long. Some skills do, but a lot over time fade away.

Over the last 6 months I have found social media both a challenge and an encouraging place.

It has given me support through such a hard time, knowing people who are in the same boat as us providing that level of understanding that you both just have and  know how hard things are.

I've also struggled with seeing the development of all our gorgeous friends' children. Having time to blossom and learn new skills is so encouraging to see, but it also brings back painful memories of the skills Ethan learnt but now doesn't have any more. This is something we face on a daily basis. There's no explanation of what causes these regressions in skills, but I'm pretty sure it's due to his memory which has been affected due to his seizures.

I've always kept a positive spin on everything I post about Ethan, because that's how we are with him. However it's hard to always remain positive about everything when your child faces so many barriers and battles to achieve all the small things.

We will always rejoice in everyone's achievements around us because we know, that just like us, they are also worrying about these skills disappearing and not lasting. We all stick together and this is the lovely side of social media. All in this together supporting each other no matter what.

Just like our lives, social media is the same, but for the most part it's good and that's the way we like it!

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Naomi Aldridge

Meet Our Blogger

I am a special needs blogger who writes about mine and my son's special needs journey. I love being a mummy to Ethan and I want to share the highs and lows with those around us to raise awareness of life with a disabled child.

View Naomi’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...