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Ever since my son was a few months old and up until now all I can remember is completing questionnaires.

It was something I hated doing because it always made me realize the things my son was not doing that he should be for his age.

Every time I filled one out it put me in a bad space.

There were many times I cried as I filled it out. It made me feel like the things he was able to do was not enough.

Although he was able to do some things, they said he would never be able to do.

Sometimes there were sections I would not even complete.

I would just put in big words that the section did not apply to him.

The other day while completing a questionnaire for a service I am trying to get in place for my son they were several sections that did not apply to him.

I could not write in big words that it did not apply to him because I was doing it on the computer.

I could not move forward on the computer without answering the question, so I had no choice but to answer it.

So, as I answered questions, I was also able to leave comments in the comment section.

As I completed the questionnaire, I realized that my son has his way of doing things that they asked me.

And they would not understand because they are not around him everyday to see that.

One visit cannot and will not determine what he is able to do.

So, I decided that I would use the comment section to explain to the best of my ability my son way of doing things.

Like how he does communicate with those who he is familiar with versus people who he barely sees. 

Or how he can go get exactly what he wants instead of asking us. (He is nonverbal)

This time around I was not sad or in a bad space while completely the questionnaire.

I felt good because I know that there are plenty of things my son can do even if it is not done the way we do things.

And we do not teach him how to do things his way he just does it.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Marissa Sweat Evans

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I am a mother and advocate for my son as well as others with disabilities. My oldest was diagnosis with cerebral palsy, epilepsy and autism.

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