Language
  • English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Our Social Media Presence

Our Social Media Presence

Following Annabelle’s diagnosis, I was lost.

I have always been that person who needs to understand everything I am doing to be able to do it. How could I parent a physically disabled child with no understanding of how to support her? I couldn’t.

I didn’t know what to do or where to go for help, so I did what most people do when they need answers and asked Google. I researched late at night for hours and hours for months and months. ‘What is cerebral palsy?’ ‘What therapy is available for cerebral palsy?’ ‘Will my child walk?’ ‘How can I support my child?’ and the list goes on. There was so much information to digest.

I set up an Instagram page in January 2018, two months after Annabelle’s diagnosis and a Facebook page shortly thereafter. I searched for other cerebral palsy families on Instagram and connected with as many as I could and what a relief to know we weren’t alone in this after all, there were other parents out there that had already experienced what we were feeling.

I quickly began to get ideas from their posts ranging from equipment recommendations to therapy ideas. I also joined as many cerebral palsy Facebook groups as I could find, the more groups I could find, the more information that was readily available for me to learn from.

The pages quickly became a place for me to hide behind when I wasn’t comfortable talking about Annabelle’s diagnosis. I didn’t want to tell everyone we knew individually as I still didn’t know enough about the diagnosis or her future to answer all the questions that would follow.

Once we had told our immediate family and friends, we then shared the pages with our extended friends and family so that they could understand a little bit about how her life was going to be a little bit ‘different’ for Annabelle going forward.

For a long time, I couldn’t say the words ‘cerebral palsy’ without my eyes welling up so communication via social media made it that little bit easier.

I began sharing photos of what we were doing at home to try and help improve Annabelle’s limited mobility and the photos of her in her therapy sessions which took place numerous times a week. Writing about what Annabelle’s day consisted of, for family and friends to read, meant that without me having to explain to several people, everyone was able to follow our posts and have a greater understanding.

Following others on a similar journey really helped me to come to terms with Annabelle’s diagnosis and for that I will forever be grateful.

Other cerebral palsy families began to follow our pages and we built up our own community.

I want our social media presence to also be something that will help others, so I share the positives but also the challenges we face on a daily basis as well as recommendations and home therapy ideas.

There is always going to be other parents out there that are at the point of diagnosis and searching for other families to try and relate to and for me, if they stumble across our pages and feel less alone or are able to learn something from us then that is a massive positive to us having a social media presence.

Social media is often seen as negative but for us, when we have a question, need advice or simply want people who understand to celebrate a success with us, there is an army of people right there waiting to support and celebrate with us!

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Rochelle Carter

Meet Our Blogger

Sharing insights on how we, together as a family, are living life ‘differently’ as a result of Cerebral Palsy in attempt to help raise awareness around the world.

View Rochelle’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...