• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Mobilising a small army

Mobilising a small army

In just over a week’s time, we shall be piling into our van and heading off on our hols.

Preparations have already begun – medications have been checked to ensure we have enough for the week we’re away from home, the route has been planned to ensure we can stop at services with changing places loo’s for the Dude, his suction machine has been checked and serviced, and the LISTS have started.

Lists of essentials we need to take (oxygen, phone number for the oxygen people…), as S is on a blended diet and formula regime his meals have been planned out and will be cooked and frozen ready to take with us, together with all the syringes, feeding tubes and other paraphernalia that comes with being a very complicated little human.

When Sam was little it wasn’t quite so bad – he still had a lot of stuff, but not quite this much.

Now, travelling away from more than a couple of days requires military planning and two cars!

Fortunately, my Mum comes away with us so her car is generally packed with Sam’s stuff (as is our roof box), while J and I share a bag between us.

J periodically likes to reminisce about life pre-child, when we travelled for 3 weeks around Japan, with only one case each and a bag for toiletries!

Going away as a family is one of life’s great joys, for us however as Sam gets older it is becoming increasingly difficult to do so.

Accessible properties to stay in aren’t always as accessible as people imagine – remembering here a bungalow we stayed in once which was advertised as wheelchair accessible and designed with disabled guests in mind, but which had a series of steep stone steps leading to the only door to gain entry.

Or the bathrooms with shower for ‘less mobile’ visitors, except the shower is over a bath making it difficult for those visitors to use.

I drone on about accessibility a lot and with good reason.

My son is 8 years old, he loves holidays, the beach, swimming, and going for days out but as he grows it becomes increasingly difficult to give him the life he loves and deserves.

Its only by letting people know what accessibility LOOKS like that anything will change.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Carolyn Voisey

Meet Our Blogger

Mum to one incredible little dude, I work full time in higher education and have my own small business as a jewellery designer/creator. I love nothing more than having time with my family, being outside and with my animals (chickens, cats, dog..!).

View Carolyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...