• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Life Changing

Life Changing

As a parent of twins, life was always going to be hectic. Raising children of the same age is not easy as there is always something that needs to be done.

But to also have a child with a disability is a whole new level of difficult, yet also gives a completely new insight into the world.

Raising twins, you expect everything to be the same.

Yet when one is disabled the contrasts quickly appear and only increase as they get older.

When Rory and Alfie were babies, it was hard to tell that Alfie is disabled, because at that age, Rory was of the same physical ability.

But as time goes on, and Rory has learnt to walk, and talk and is developing at a terrifying rate, it is easy to see how disabled children can be left behind.

How society expects them to achieve less and therefore offers them less support and opportunities to progress.

So, you become an advocate, whether you want to or not. You force society to accept and embrace your child, the way they embrace other children.

Because Alfie is likely to be wheelchair bound,

the majority of his professionals expected us to put him in a special needs school and try to move our focus from helping Alfie to progress and develop, to simply making Alfie ‘comfortable’.

But there is no reason why he cannot be comfortable and healthy whilst also progressing and developing.

There is no reason why Alfie’s education should be less important than another child’s.

There is no reason why Alfie cannot have the same opportunities as Rory.

You also see the inequalities that society tries to hide.

Be promoting inclusion, it is as though society feels it is doing its part, yet when you look below the surface...

There is still so much missing for disabled people that you are fighting an uphill battle before you even realise it.

Rory is expected to have some level of independence at the tender age of 2, yet Alfie is expected to be reliant on others for the rest of his life and will have to fight for equality.

But the journey Alfie, and every other person with a disability, will go on is no less important than anyone else’s journey.

It is simply different. It may take them longer to complete a task, but they can still get the same result, they may have a different method, but the same outcome.

Their journey is no less interesting and exciting so why does society make it so much harder?

Why is the world not as open for Alfie as it is for Rory and when will it change?

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Rebecca Highton

Meet Our Blogger

I am a mum of twins, one has special needs. I enjoy blogging about life and the reality of parenting.

View Rebecca’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...