• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Heatwave… again?!

Heatwave… again?!

Oh good grief, I thought the UK was meant to be a temperate, damp country?!

Unfortunately, as climate change takes hold and the UK bakes in the second 4 day heatwave of the summer, Team V have taken shelter in our front room where it is (for now at least) mercifully cool!

Amongst the various dire weather warnings on the TV, there are few of note that are not publicised quite so readily but that if you stop to think make perfect sense.

For example, children like the Dude who use wheelchairs and have limited or no independent mobility are at a very great risk of heat stroke – they can’t seek shelter if you don’t take them to it.

Likewise, sitting in a chair all day gets very hot and sweaty; for kids like my boy who take medications that already increase their need for water during the day, the sudden increased temperatures put them at a much greater risk of heat stroke and dehydration than their peers.

The same goes for adults too.

A number of medications including SSRIs, blood pressure medications and others will also increase your risk of heatstroke.

Trust me, it isn’t worth getting sick just to soak up the sun's rays for a few days of extreme heat.

We *will* have sunny days again in the UK (promise).

Another issue for my boy is that the changes in air pressure herald an increase in seizure activity – and it’s a real doozy.

For the first day of this heatwave, the poor chap was pretty much twitching constantly, tipping into a full seizure every hour or so.

They may not look like much but they are exhausting for him. The only thing to do at this point is to try and keep him cool.

Enter, the Cool Pool.

In truth, this is simply a 2m wide, 60cm deep paddling pool bought off a well-known internet site, set up on the patio.

Thanks to its fabric cover and filter it stays clean, and the sun warms it enough to take the chill off, however, it is still a tad cool shall we say.

Perfect for when the temperature is +30C and you are an 11-year-old chap who feels like he’s melting.

Mum and Dad are quite big fans too.

Forget the expensive SN equipment for a moment; this paddling pool has quite simply been the greatest investment of the past few years.

The Dudes gantry hoist fits over it allowing easy depositing/removal of said small person, hopefully meaning we’ll get a few years of use out of it.

The support of the water allows him the freedom to move independently, something that gives him immense joy, and the resistance it provides helps exercise his muscles building his strength.

Best of all, he loves being in it so it’s physiotherapy in disguise – our favourite kind!

If like us you have a child who hates the heat but loves the water, the boy and I cannot recommend this strongly enough.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Carolyn Voisey

Meet Our Blogger

Mum to one incredible little dude, I work full time in higher education and have my own small business as a jewellery designer/creator. I love nothing more than having time with my family, being outside and with my animals (chickens, cats, dog..!).

View Carolyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...