• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

He needs a what now?!

He needs a what now?!

Until Sam arrived I had naively thought that you put your child into bed and (ignoring the expected wake ups, visits to mum and dad’s bed etc), that was that.

As someone who needed splints due to bilateral hip dysplasia as a baby, I knew about splints etc and something of the trials parents face with getting their children comfortable with said attachments.

However, once Sam was given the all clear on that front as an infant we thought no more about it.

Until, that was, a sleep system was mentioned.

This is basically a series of wedges and cushions designed to position a child in a particular position and to keep them there... sleep system mark 1 lasted all of 1 night before being returned to physio... he didn’t take to it then?

Eem, no. No he did not. He flipped himself out of his cot bed INTO OURS.

Epic. Fail.

It wasn’t until 2019 that the subject of a sleep system returned to our minds.

Sam's scoliosis was progressing, and chats with other SN friends had indicated that a sleep system, correctly fitted to the child, could help support the spine and slow the progression of the curve.

It didn’t take long to arrange, a phone call to physio and the referral was made.

A few weeks later, the dude had his brand new sleep system and we were psyching ourselves up for a few sleepless nights as he learnt to accept this restrictions to his night-time freedom of movement.

We needn't have worried.

The sleep system is possibly my favourite piece of kit that Sam uses.

He is so ridiculously comfy in it, it supports his spine and eases pain, while keeping his head is a good position and his airway clear.

During his month long stay in critical care in 2020 we brought it into hospital, and the difference it made to him was enormous.

It just goes to show, something that doesn’t work at one time is often worth revisiting in the future; I kinda wish we’d tried it again sooner but hindsight is always 20:20 isn’t it.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Carolyn Voisey

Meet Our Blogger

Mum to one incredible little dude, I work full time in higher education and have my own small business as a jewellery designer/creator. I love nothing more than having time with my family, being outside and with my animals (chickens, cats, dog..!).

View Carolyn’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...