Language
  • English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Happy and Healthy Baby

Happy and Healthy Baby

In fact a common response when you ask a pregnant person whether they would like a girl or a boy is; ‘As long as the baby is happy and healthy then I don’t mind’.

So what happens when your baby is born with a disability?

When we found out that our baby had a disability and wasn’t going to have the life we originally mapped out for her, I crumbled.

On the outside I was strong, I would tell people she was special, that as long as she was smiling, I am smiling. Then I would scream and cry when I got behind closed doors.

It has taken a year for me to realise that yes, I would have preferred my daughter to have a life that isn’t full of appointments and uncertainty of her future. Yet I wouldn’t change my daughter at all.

My daughter is full of determination, she is full of smiles and she loves cuddles.

My daughter sees what other children are doing and she finds a way of doing it, just in a different, outside the box way.

My daughter does get tired a lot quicker than most children, however, when she is awake she is making the most of every minute she can move, she is not lazy.

My daughter can play with her siblings even if it is slightly different to the way I had imagined.

My daughter is still loved by her family and friends.

My daughter is still loved just the same whether she has a disability or not.

I would still fight for my daughter until my last breath, which I would do for all my other children.

My daughter is still my daughter, whether she has a disability or not.

I never envisaged my family to be how it is. I wouldn’t change it for the world.

Each of my children teaches me new things about myself every day. My baby is teaching me how strong I am, she is teaching me determination, and she is teaching me patience.

My daughter still doesn’t have her diagnosis, however her symptoms aren’t good and are pointing to a life limiting condition.

This is the only thing I wish I could change about her.

She is so happy and while she is smiling and fighting, that is exactly what I will be doing.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Rebecca Shayler-Adams

Meet Our Blogger

We are just a typical family muddling along our day to day lives. 4 kids, 1 with autism, 1 with an unknown neuromuscular condition

View Rebecca’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...