• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

“Get Him Assessed”

“Get Him Assessed”

People, myself included, often ask each other “what do you work as?” or something similar to get to know the other person. I used to say “I’m a specialist Learning Disability Nurse'' with great pride, although now I don’t always know how to answer. I worked from graduating (I’ll throw in that I got first class honors because well why not…) until going off on maternity leave with my triplets. For numerous reasons, I have never returned to nursing. I am currently on the emergency covid register in case I can ever help in my area. However, I haven’t worked since my kids were babies!  Despite that, I do still have knowledge of some of the things that challenge our beautiful little boy.

Jacob has numerous conditions that I won’t even bother listing because in all honesty, they aren’t actually even that relevant here. Something that has become more obvious as he has grown, is a shift towards patterns of behaviour that some would say are consistent with children on the autisic spectrum. Why? For a few different reasons like him being sensitive to noises, and textures. He is also quite rigid in his thinking, having stereotypical repetitive behaviours such as hand clapping, and only eating certain foods.

It was decided that he was probably on the spectrum and should be assessed as such.

His neurology team found out that despite three EEG’s that showed clear epileptic activity, some of his seizures were non epileptic in nature. They looked like his epileptic ones, but they simply weren’t. With all the other “signs”, it was decided that he was probably on the spectrum and should be assessed. What did his mum, a trained Learning disability nurse, say to that? No thank you.

The reason I said no was because I don’t feel Jacob being diagnosed with Autism would assist him in any way, at this point in his life. I have absolutely no difficulty admitting he may be on the spectrum. I will never think less of him (or anyone else) for that reason. If I did I’d never have gone into the job I did. In saying that, I already rhyme off a lot of conditions when talking about Jacob to his various professionals. There does come a point that he is lost in the process and overshadowed by his conditions.

I know the things that would be put in place to help him with his behaviours, but we do them at home anyway. So why label him?

I know the things that would be put in place to help him with his behaviours and do them at home anyway. So why label him? His school are aware of my views on this and they agree that while he isn’t formally diagnosed, they treat him as if he is autistic. There are so many amazing people with autism who have inspired me and I would be so proud to say my little boy is one of them. The time to say that just isn’t right now, at this point in his journey. That doesn’t mean I feel less of families who make a different choice in similar situations at all. Thankfully the only person I really have to answer to about this is my son. I am fairly sure he will understand in the future that his stubbornness is from his mama and we’ll wait until it is right for us, not the medical professionals.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Katrina Dorrian

Meet Our Blogger

Hi! I'm Katrina, I have 8yr old triplets; one who has spina bifida, hydrocephalus and epilepsy. I also have MS, so we've a busy (but happy) house!

View Katrina’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...