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Forever Nester

Forever Nester

I’ve been asked how does it feel knowing I will never be an empty nester? And before I was asked this question, I never ever thought about it. I guess because I knew that Jaylen would have to be in our care for the rest of our lives. Every time we talked about our future it has always been that we would purchase an RV and travel the world with him.

I know that one day our girls will finish high school and go on to college. One day they will have their own little families. And although the thought of it has me an emotional wreck, we still have our son who won’t get to experience those things. Therefore, we must make the best life possible for him. And that’s what we are going to do.

Our son is the oldest of our three and our only boy. He has cerebral palsy, autism, epilepsy, and a few other medical conditions. He relies fully on us for his care. He can crawl, and he does a lot more than what was expected of him at birth. But unfortunately, it’s not enough for him to be able to live in this world alone. Which makes him our forever nester.

I must admit it does make me sad that he won’t ever get to experience college life or one day become a father. But I promised him that we will get out and see the world together. Although life gave him some limitations, I refuse to allow those limitations to limit him. And even though he won’t be able to do things that other people his age will be able to do. He will still live the best possible life that we can give him.

I never looked at it as me being a forever nester. I just knew we would always be together. And the thought of it never made me sad or look at it any other way. It’s just what I must do and what I absolutely love to do.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Marissa Sweat Evans

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I am a mother and advocate for my son as well as others with disabilities. My oldest was diagnosis with cerebral palsy, epilepsy and autism.

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