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Fear of New Things

Fear of New Things

In an ideal world Zachariah would be able to access everything without worrying about accessibility, adaptations and barriers.

Usually, our biggest battle is down to Zachariah being in a wheelchair and needing changing places.

However, another huge struggle is his epilepsy, and the worries over triggering a seizure.

I've declined party invites, play dates and trips out because of this, and disregarded holiday destinations.

And now I wonder if I've over thought everything and almost regret not going to a lot of the events I've said, "no", to.

I mean, his epilepsy does need to be taken seriously, and there have been times when there was no option but to say, "no".

However, I can't help thinking that Zachariah's missed a few opportunities that could have been enjoyed.

One activity in particular is bowling.

The music, the lights, the crowds.

It's one big party and one big bag of stimulation that could trigger Zachariah's epilepsy.

Not only this, but there's the fact that Zachariah may not get anything out of rolling a ball into skittles.

And of course, the dreaded toileting issue, we so desperately need resolving... So why risk it?

I think sometimes I let my worry unfold that much that I lose sight of the initial worry and get lost in an unreasonable state of mind.

I had let this beat me up so badly that I had just written bowling off completely.

But like anything, things should always be reassessed.

And that's exactly what I did over Easter. I told the husband that it was time to try something new.

Zachariah was the healthiest he had been for a long time and we needed to make the most of it.

Going bowling for the first time.

We invited his Auntie and Uncle, spoke to the bowling place about our needs and got it booked.

And what an amazing idea it was, as Zachariah had the time of his life. He smiled, he giggled and he only went and won the first game!

He absolutely loved the atmosphere and having the independence to join in. And yes, it did get too much half way through, but having the tools to accommodate for this made it possible.

We popped on his ear defenders, pulled his hood over and let him nap.

Once refreshed, he joined in once again.

I feel so happy that this worked out, and dare I say it... I feel proud of us as a family for conquering the fear and doing something new that initially scared us.

I now look forward to going bowling again and who knows, Zachariah may get another party invite that we can say yes to!

Up next... The Cinema! Watch this space.

Much love,

Rochelle (My Daily Miracle) xx

 

 

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

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Meet Our Blogger

I am parent to a gorgeous little blue eyed boy who has complex needs. I have a Facebook page, 'my daily miracle' where I share our life with others. I am an active parent who's working hard to make Zachariah's world more inclusive for him. I like to look at the positives and celebrate everything, but I'm also not afraid to show it how it really is when life gets tough.

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