• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Early Intervention

Early Intervention

That after referral, they’ve been discharged from services and assessments, because their child has shown a certain amount of empathy, or had decent eye contact, or didn’t show any repetitive behaviors?

Why are so many services disregarding parental observations, and instincts based on a half hour meeting with a child they have only known through paper?

When we were first referred to the community pediatricians, we were asked a lot of developmental questions, a physical examination was completed, and some educational tests were done.

We were discharged at 3 years and four months, with a child who was ‘an extreme version of normal’ told to go a parenting course and give up smoking! (Me not her)

The consultant was so judgmental, and unhelpful that from that one 30 minute appointment I had lost all faith in a system designed to help and intervene.

My daughter and our family were at this point at crisis stage, the HV actually said to me, that if my mental health wasn’t stable she wouldn’t have been leaving me.

She was worried for me and my family because of the lack of support and the deterioration in my child’s and my mental health.

I would like to point out that I had a new born baby and so emotions were heightened.

I was in no way depressed at this point, just stressed out to the absolute maximum. Not one single person believed me! I was on my own and that is one lonely place to be.

Eventually things had got so bad that they were forced to refer her again as an emergency and at four years 9 months she was finally diagnosed.

This is a full 2.5 years after I had asked for help. My Natural instinct as a mother was spot on.

And it has been each and every single time I have suspected something amiss with her. She now has a multitude of diagnoses, learning difficulties and has just started a special school which she is loving.

I am hopeful for the future. But I am also very bitter that no one listened and we couldn’t get that very early intervention that we so desperately needed.

The refusal to assess her early, has led to a delay in every single service that we may have been entitled to.

Mentally she is three years behind her peers, physically she is able. Which leaves her vulnerable in the way she is treated and peoples expectations of her.

I spent two years of her life researching and googling, and fighting for her rights.

Those years we will never ever get back, but it was essential for our future and I would do it all over again I needed to. I once heard a story in a support group, that made me well up with pride.

A lovely lady had suspected Autism for her 9 year old for a long time and had heard the horror stories, so she took it upon her self to know every single inch of her child inside out, she done so much research and had written out the perfect referral proposal that her boy was seen within 4 weeks and diagnosed on the spot.

The DR congratulated her on her extensive knowledge and she is now on the pathway to getting her boy what she needs.

My advice is to do your homework, join support groups which can be found in the search option of face book and ask lots of questions, document everything.

Keep a behavior, sleep and food diary.

Know your stuff.

If you go to your appointment where the opening line is “There’s something different about my child” and no real explanation of this then expect not to be taken seriously.

Especially if your child has the ability to mask those subtle symptoms.

Know what you want, don’t be afraid.

You need to be strong and assertive. I wish any of you the best for future appointments.

I hope that you are taken seriously and I hope that you are successful in getting early intervention for your child, because in my opinion it is KEY.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Jodie Eaton

Meet Our Blogger

View Jodie’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...