• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog

Dangerous and Annoying Epilepsy Misconceptions

Dangerous and Annoying Epilepsy Misconceptions

Some common misunderstandings surrounding epilepsy are innocently annoying and a nuisance yes, but they're made by ignorant people who just don't know any better like -

Epilepsy is contagious or it's a mental illness

Other myths are just down right horribly dangerous and even potentially deadly like -  Epilepsy is really a demon possession

My daughter who has suffered with an uncontrolled seizure disorder for fiftteen years, has been the victim of some outrageously ignorant statements and even false accusations concerning her experiences with epilepsy.

The following two mistaken beliefs in particular have negatively impacted my daughter's well being and could have had disastrous results or even been fatal!

• Epilepsy is not really a problem today because there are many effective medications and treatments available that control seizures.

The fact is that approximately 150,000 Americans have epilepsy and 30% of them do not have complete control over their seizures despite having tried all the seizure medications available, different combinations of medication cocktails, surgeries, and having seizure devices implanted.

In the UK 600,000 people have epilepsy and 48% of them do not have complete seizure control.

• You cannot die from epilepsy.   Yes, frighteningly so, you can die from having a seizure.

This is called SUDEP or Sudden Unexpected Death in Epilepsy.

The cold, cruel fact is that every year 1 out of 1000 people who have epilepsy will die unexpectedly while having a seizure. If seizures are uncontrolled the risk of SUDEP increases to 1 out of 150.

That’s too many  people dying from epilepsy!

Share this link to help raise awareness of Epilepsy: The Facts

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Claire Smyth

Meet Our Blogger

View Claire’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...