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Are You Being Silenced As A Special Needs Parent?

Are You Being Silenced As A Special Needs Parent?

I don’t know about you, but I passionately believe in free speech.

I strongly feel that it is one of our most important rights, and it is one that I would willingly go to the barricades to defend, but when does discussion, debate, and even downright argument spill over into something much more sinister?

And what does this mean for those of us that campaign and stand up for the rights of some of the weakest in our community, including children with special needs who cannot speak up for themselves?

Maybe you have experienced this too, particularly recently, as it seems to be an increasing trend of our times for people who disagree with something or someone to refuse discussion and debate in favour of trying to silence the voice of the person they disagree with; to try to claim a position of authority which refuses to accept or engage with any other views than their own.

Those of you that are regular readers of my blog will know that I often include my autistic son, James, in what I write about.

His and our story continues to help many families who are on a journey a bit like ours, and overwhelmingly the comments we receive from readers are positive and encouraging.

We do, however, also get comments that are quite the opposite; that challenge not only what is written but my right to have an opinion or to write about it at all.

For example, some in the autistic community (but only a small minority, by no means all, most are wonderful), maintain that as a parent of an autistic child I have absolutely no right to share his, and our family’s, story.

People that have never met James, have never met our family, make assumptions about us as parents, decide whether we are actually autistic ourselves or not, and then pass harsh and unbending judgement about our lack of a right to share our story.

Now I have absolutely no problem at all with debate and discussion with people who disagree with me, that’s healthy and helps us all to learn from each other and to grow together, but to condemn someone to silence for having a different viewpoint to your own, based largely on unfounded assumptions and unfair prejudices, seems to take this over the line into what could be received as controlling and dangerously oppressive behaviour.

We’ve seen examples in the fairly recent past both from around the world and more locally where the crushing of free speech and the promotion of a single approved ideology that has to be accepted by all has led to terrible oppression and horrendous consequences for anyone with a different viewpoint, especially free-thinking liberal minded people.

Maybe you have experienced this kind of silencing yourself?

Maybe you have been told what you must believe, or what you must say or not say? Maybe that has been by people in the disability community, or by professionals, or by other parents, or by family or friends? Maybe you have been able to stand your ground, or perhaps you’ve found it to be just too hard and have given in?

If that is you, remember that you do not stand alone, you do not fight alone, your voice matters as much as anyone else’s and it deserves and needs to be heard. There are many of us that are right there with you.

So, I’ll keep on speaking out, keep on standing up for those I feel called to stand up for, and will respond to the hatred with kindness, to the anger with compassion, to the oppressors with forgiveness. I encourage you all to do the same, let’s all stand together in love…

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Mark Arnold

Meet Our Blogger

Mark heads up Urban Saints pioneering additional needs ministry programme and is co-founder of the ‘Additional Needs Alliance’, a learning and support community. He is a ‘Churches for All’ partner, a member of both the ‘Council for Disabled Children’ and the ‘Living Fully Network’, and serves on the executive for ‘Children Matter!’ Most importantly, he is dad to James, a 17-year-old Autistic boy with Learning Difficulties and Epilepsy.

View Mark’s Profile

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