• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog



We have a bit of a habit in this society of conflating the word ‘accessibility’ with wheelchair access. It is quite easy to see how this has happened. Many years ago, neurodiversity and non-physical disability were less understood (although we still have a very long way to go). We thought about an accessible building as having a ramp for a wheelchair user, perhaps a lift, that was about it.

Vitally important things, but we didn’t consider about accessible activities; things like autism-friendly cinema screenings, sensory rooms in hospitals, or queue jump passes for rides at theme parks. These are the small changes, the reasonable adjustments that can make or break a day for many families of disabled children.

The knowledge however simply isn’t there.

We still endure double takes when we jump a queue at a theme park, we still have stares when a meltdown occurs in a supermarket and our eight year old (who I can no longer lift) is lying across the floor. I will never forget the moment that someone once stepped right over her when she did that, a gesture so lacking in compassion.  

As most of us will have discovered in the childhood disability community, having a ‘hidden’ disability can bring its own set of challenges. Our little girl wears an epilepsy helmet nearly all of the time. It protects her from physical injury, but a by-product is that it protects us from judgement or sidelong glances if we use a disabled parking space. It’s an obvious physical signifier that she is disabled.    

Accessibility to the world, to life, is not just about reasonable adjustments from companies or organisations, where we are protected by the law. These adjustments need to come from the public, too. Often they do and we are offered help, or a supportive smile. The times we are overlooked or stared at however; they sting and sting. 

Often we need people to make a little adjustment to their day to help us get through ours. Sometimes that adjustment is as small as letting us skip ahead in the queue if you can see my child is not coping. We need to empower everyone with the awareness and education to help. I hope we can together raise a generation of children for whom this becomes second nature.      

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Sharon F

Meet Our Blogger

I'm Sharon, I have a daughter with epilepsy and a severe learning disability. I blog about our livewire life.

View Sharon’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

No Interest if paid in full in 4 months on

Purchases on £99+

UK Customers only. Subject to credit approval. See terms below

Paypal Credit

Pay now or pay over time with PayPal Credit. Just use PayPal Credit in PayPal checkout.

Subject to credit approval.

Purchases of £99+:

No Interest if paid in full in 4 months on purchases of £99 or more.

  • A minimum monthly payment is required and may or may not pay off the promotional purchase by the end of the 4-month period.
  • No interest will be charged on the purchase if you pay it off in full within 4 months. If you do not, interest will be charged on the purchase from the purchase date at the Purchase APR applicable to your account.
  • Any remaining balance due after the 4-month promotional period or any transactions under £99 will be charged interest at 19.9% p.a. (variable).

Purchases of £98.99 or less:

Buy now and pay over time with PayPal Credit when you spend £98.99 or less.

  • If you pay your balance in full each month by the payment due date that is on your statement, you can avoid paying interest.
  • Or, make minimum monthly payments, or any additional amount of your choosing, until you've paid off your balance according to your standard account terms. Please note, interest charges may apply.
  • We'll send you email reminders when your payments are due. You can also keep track of your account and view your statements online at any time.

About PayPal Credit

  • PayPal Credit is a reusable credit line available on purchases at thousands of stores that accept PayPal. It's also available for purchases on eBay and exclusively at thousands of other online stores. Plus, it comes with the same security and flexibility you trust from PayPal.
  • In order to maintain the 0% offer, you need to keep up monthly repayments and stay within your credit limit. Credit subject to status. Terms and conditions apply. UK residents only.

Please wait...