Additional Needs
And then you were 13
by Carolyn Voisey
on 13th May, 2024
Waiting, Anticipating…
The purpose is to see if the Doctors can identify where in his brain the seizures are coming from and to see if those areas correspond to the abnormalities that were identified in his MRI a few months ago.
In itself it is a non-invasive procedure, however the prospect of trying to entertain a five year old, with a cognitive age of three to four years old, for four days, while he can’t get off the bed, does not fill me with any great joy!
As the admission is looming I’m feeling ever more unsettled.
We have wanted for this to be done for over three years and it has been a massive battle to finally reach this point, involving three neurologists, differing opinions and me having more than a few hissy fits in our primary neuro’s office!
We have to know.
We have to find out if there’s any more than we could do to help our baby boy.
However there is a very good chance that it will raise more questions than it answers, and I’m not sure how I feel about that.
We feel relieved that we’re finally getting the necessary tests done, but very anxious and apprehensive about what the results may show.
We are torn between wanting the results to show that another therapeutic option may be available to him, coupled with fear that it might and the knowledge that any decisions made would not be easy.
So, tonight I have made sure the iPad is fully charged and I have packed the chargeralong with art materials (paper, pens, etc.) in the hospital bag ready to attempt to entertain the little chap while he does his thing.
I am now going to try to get some sleep, as it may not come easily this following week!
