A lot of things I've seen are focusing on the negatives to lockdown and being at home.
Yes it's been incredibly hard but it's also brought some wonderful times for us too. Here are my top five of things we've loved about being together at home.
Time to slow down and appreciate time without dashing here there and everywhere without appointments. We are constantly running around for appointments. We visit 3 different hospitals and one other centre for an appointment. This in between any appointments that can be done at school or at home.
It’s so time consuming so it's been lovely to have that time out to have a break in the business of everyday life.
Ethans health has been the best it's been in forever! No hospital admissions, no hospital visits and no catching any from school. Seizures haven't escalated due to illness or tiredness. Although he's had a few paramedic callouts this has resulted in us still being at home being able to manage things here.
We've had time for therapy that we wouldn't usually have. Being able to give that time to daily stretches and practising new skills and working on old skills has been so lovely. Everything needs time with Ethan and it's something we don't usually have. He gets lots of therapy at school usually but it's nice for me to be able to have extra input during this time as well.
Ethans eating has been great. He's finally gained the weight he lost a couple of years ago when he was sick from seizures. He's worked incredibly hard and whilst being home it has allowed him time to eat at lunch at his own pace. He hasn't been ill, so he's not had periods of no eating and it's been so great for him, plus our dietician is happy!
We spend a lot of time at home during the holidays anyway but it's been nice to have extra time at home to explore all our toys and create lots of new sensory play memories we've done lots of play around themes and Ethans loved exploring different materials using all of his senses.