• English
  • French
  • German
  • Italian
  • Portuguese
  • Spanish
  • Swedish
Back to Firefly Blog



Sometimes families of children with special needs tend to isolate themselves. And it could be for a lot of different reasons.

But I find the number one reason to be because they don’t feel like their family is included.

I myself have never experience this with my family or friends. But my family has become one of those isolated families lately.

We're usually invited to everything and Jaylen is always included in whatever it is. Because they know if he’s not included than we will not partake in it.

It’s just lately we been spending a lot of time home. My friends and family do come over to spend time with us because I’m open with them as to why we stay home.

But for those who don’t know they often get offended when we don’t come around.

They assume we feel like were better than them or we just don’t have any time for them anymore when it’s not the case.

I must admit that being home all the time get very depressing especially when I want company, and no one is able to come over. But I can’t expect everyone to stop their lives for us.

Raising my son has become challenging but knowing his diagnosis has helped us to find the resources we need to help him as well as us. And right now, the safest place for us to have him is home.

In our home we have things we need to keep him safe and we can’t expect everyone to Jaylen proof their home just for us to come over.

I never expected it to get like this for my family, but it has been our reality for a while now. And although from the outside looking in people say things can’t be that bad.

But its honestly our reality no matter how good we make it look. And to be honest it took a lot for me to accept it for what it is.

That include talking to other families that have been through this and had to isolate themselves to get through it as well.

I’m thankful that I have the support I have as we get through this. And even more thankful to have people I can talk to.

Firefly Blog

Real life stories, issues and experiences of day to day life by special needs parents and
healthcare professionals.

Marissa Sweat Evans

Meet Our Blogger

I am a mother and advocate for my son as well as others with disabilities. My oldest was diagnosis with cerebral palsy, epilepsy and autism.

View Marissa’s Profile

Become a Firefly Blogger

Would you like to write for Firefly? Join our blogger network of parents, therapists and professionals.

Get In Touch

Become a subscriber today

Join over 40,000 subscribers to our weekly newsletter with insightful articles just when you need them.

Join Mailing List

By using our site you agree to our use of cookies. Click here for more info.

Accept & Close

Please wait...